Thanks, I didn't know that website had a message board and will check it out. I think at this point I have to try to go dairy free as well to see if that is part of the problem.

I am so sorry about your son. I think you might want to get him tested for other allergies. I found out I am allergic to eggs in addition to gluten and they make me very, very sick. Eggs are in so many things-even in things you wouldn't think they are in. If he is still having these symptoms he is probably allergic to something else. Have you checked to see if he's allergic to peanuts? That might explain the vomiting. The poor thing. How old is he? Also, I am very sorry that his father passed away. That stress is definitely not helping him. You might want to try to calm his system down for a while with basic food-I have to do that once in a while. Basically, I would recommend in the morning Van's gluten free waffles (the blueberry ones are great, you can find them at Stop n Shop). For lunch, a simple baked potato with raw or steamed vegetables. Keep the dressings light. Try Kraft Fat Free dressing. It's the only one without eggs or gluten. For dinner, try chicken and place that on top of vegetables and white rice. Again try to keep everything as plain as possible. If you keep this up for a few days I am sure (and I sincerely hope) he will feel better because his system will calm down. Please let me know if this works. I hope it does. Let me know if you need anything. Best wishes.

Hi,
I live in the same area as you do, if you need other doctor's to see, let me know. Your son does sound like it is maybe another food in his diet that is causing the problem, from what I understand and have been told, take away one food and a secondary one may show up. In other words, his body was dealing with Celiac and now that that has calmed down, it is trying to fight other food allergies, sounds confusing, but it makes sense. Also, has he been tested for other things? Keep us posted, Good Luck, Donna21

Dairy causes me the same symptoms you describe. I have gotten where I know if the stomach problems are dairy or gluten mostly by where the pain locates. The lowest one is dairy which also causes the most pain. The gluten is more bloating and general sick feeling with pressure sometimes on the diviticuli (over 40 people have these). Yes, as I took away the gulten other allergies popped up. My doctor did a IGE IGA blood test to help identify allergens and things not tolerated well. God Bless and I hope he feels much better soon.

Thanks for all the advice. We had an appointment today and were lucky enough that someone cancelled and I had a receptionist in the office that took sympathy on our situation.

He had a full work up with a great doctor. She did a physical exam and a rectal (which was hard for him). She thinks the recent illness was a rotovirus given the color of stool.

I have to do four stool samples over the next few days. He had an xray done to make sure that stool wasn't backing up and in his abdomen to make sure that wasn't causing any leaking. The doctor said that some celiacs when they have leaking that it is caused by blockage from not being able to pass stool. I didn't know that.

She did a full blood workup and is checking his thyroid as well. Doing blook work to check liver enzymes and for any inflammation. She said she would prefer to do the blood work when he is not gluten free but I can't do that as he would get too sick.

I also have to go back to have a lactaid breath test done to check for an intolerance of lactose.

We got through it pretty well and I am glad that we got in so quicly and had such a thorough work up. The doctor said that if any of the blood work was elevated she wants to do a scope.

Also set up an appointment with a nutrionist as well. Very thorough doctor and I am relieved that some better answers may be coming.

I don't think it changes how we are managing the diet except that I have to be stricter about following it.

Thanks for all the support!