You are going through a lot right now. With all this stress I'm guessing your IBS-D is worse. I'm so sorry that your at the point of tears everyday. I have all 4 things you mention in your post, celiac, IBS-D, thyroid, and migraines.

First of all I would push really hard to get this test over so you can get off gluten again. Your GI says you should feel better right away, I didn't. It takes 6-9 months for your intestines to heal. It took several months for my migraines to get better, gluten was my biggest trigger. Having such severe IBS you probably are having absorption problems and should have your vitamin D and vitamin B levels checked. Mine were terrible after years of diahrea. My GI ran those blood tests. It's believed now that gluten attacks your thyroid. Once I was off gluten for over a year I started to take less thyroid meds. My numbers got better every 3 months and we kept lowering how much Synthroid I was taking. For the IBS-D my GI doctor put me on Creon enzymes and a really high quality probiotics to get the flora back in my intestines. I also drink Kombucha tea a couple of times a week, it has probiotics, digestive enzymes and is fermented which is good for your stomach. I drank them everyday for the first 12-14 months. That took almost a year to get the flora back. I finally found that one of my drugs was causing most of my IBS-D and stopped taking that. I was in diapers some days. Now only stress or being glutened will start the IBS. You might want to start a food diary and see if there is something that you can identify that makes it worse. I also got Lomotil for the diahrea instead of Immodium. It's a prescription drug and really works. I would ask for that until you start to feel better. Your intestines probably have a lot of inflammation, that takes a long time to correct. You might want to post this on the IBS site. A lot of good information there.

I was a wreck emotionally, always afraid I would have an accident in public. Having intestinal problems are awful. People don't realize how hard it is on you. It took me over a year to feel better, it wasn't right away. But if you just keep at it, over time I think you can feel better and keep up with your kids.

Really sorry you've been through so much.

Sending good thoughts and hope you are feeling better soon. I got this quote from someone yesterday, it helped me put my problem in perspective.
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"Note to Self - I am doing the best I can with what I have, in this moment ---- And that is all I can expect of anyone, including me."

Hi, vannillabear, and welcome to this group of nice people. I hope you will be encouraged here. Some years ago I had "bouts" pain (that doubled me over), with vomiting. I was told that I had IBS. When I did research, the diagnosis didn't seem to make sense, but I'm not a doctor. Anyway, 7 years later I needed a hysterectomy because my problem was actually severe endometriosis. It affected my appendix, and my appendix was ready to rupture. It also had attacked my intestines. The surgeon said I was a mess. There were also thyroid problems for years that a doctor described as not bad enough to put me on meds. Next, I ended up with Polymyositis and Lupus. Finally, I started seeing a connection between bread consumption and my symptoms, so I went gluten-free. My neuro for the polymyositis told me that there was no clinical evidence that a gluten-free diet helped, but he said many of his patients provided anecdotal evidence that a GF diet helped them, so he had no problem with me eliminating gluten. A few years ago I moved and found a new doctor. When she read my medical history, the first thing she said to me was to get on a gluten-free diet. She said, "Gluten is like a poison for anyone with an autoimmune disease," and, "Gluten likes to attack the thyroid." Also, along the way I was given a blood test for celiac disease, and the test was negative. However, the doctor who ran that test told me that the blood test is only 40% accurate, plus I had been GF for a year before he ran the test. Anyway, I know that I am gluten intolerant, and I will never willingly eat gluten again.

As Lynn mentioned, it can take a long time for the intestines to heal. I've heard between 6 and 12 months. Plus, there can be other grains that trigger problems. For instance, corn bothers me sometimes. I have two friends who must also avoid soy and gluten, and one friend who must stay away from dairy, gluten, and canola oil. You might have more than one trigger. In fact, some people must eat a completely grain-free diet. I'm posting a link to Dr. Peter Osborne's video about gluten that is very informative. It's about 30 mins. long, but is well worth watching.
http://www.youtube.com/watch?v=cv5RwxYW8yA

BTW, if you are concerned about what to eat on a GF diet, join Pinterest. I have found thousands of recipes (no exaggeration). Best wishes to you.

Thank you so much guys, your comments and sharing your experiences have helped me feel better today. I really appreciate the support. I have been on the IBS, epilepsy and the thyroid disease forums. I'm finding more help here so far (reading everyone's stories and stuff). I am on pinterest so most of my dinners are gluten free and the nights I make something normal for my family, I'll make myself a salad. But yes, I have found others that end up gf also end up with grain issues as well. So I'm looking into that as well. Thank you guys for being so welcoming and open. It's so nice to have someone to talk to. It's so depressing going through all of this all the time. I wish sometimes I could get a vacation from my health issues.

22Lynn, I totally know how you feel! I've also thought about diapers sometimes when it's horrible. It's so embarrassing, my family has finally adjusted to my issues but still it's such an inconvenience.

I don't get why people like us have to live this way. It's ridiculous!

Also more medical info on me: I am deficient in vitamin B and D so I do take supplements, and I can't take synthroid I take Armour for my thyroid because of ill side effects to the syn and my body does not convert T4 to T3 properly. I do take a refrigerated probiotic often. I take immodium practically everyday. I haven't heard of the other one you mentioned. I know I can't eat any dairy or soy. I limit my almonds. I'm ok on corn. I can't do oils or soups or broths. I can't eat certain fruits and veggies either which really sucks. So I don't know. I don't get a lot of what's going on now a days.

In the past, doctors often suggested to increase fiber for some IBS symptoms. A dietician from Australia developed a diet eliminating certain fodmaps ( do a search to understand) .all those good things like apples, broccoli, Brussels sprouts, much of what I was eating for increased fiber, were all the worst things for me. Yes, our diets are limited but paying attention to this plus the gluten-free diet since Feb. seems to be working. Not all allowable fodmaps agree with me so I have eliminated a few of them too. Wish you luck with this and hope your efforts will be worthwhile.

Thanks. I too can't have apples and stuff. It's just not fun.

I also have migraines, IBS-Mixed, Thyroid problems and I am thinking that I may have celiacs. A few people in my family now have it like my cousin. I went gluten free before I knew I had all these problems and it may have helped. Then my gastro doc just said that I just have IBS no food allergies (I think I have a dairy allergy too) and dismissed me. Now the pain I have is all through my arms, hands, fingers, legs, feet, and toes. Sometimes so bad that I think of going to the ER. I am on lyrica but it doesn't help. My migraines are so bad they gave me percocet, narcotic. I get them almost daily so bad that I throw up. I am about to get fired from my jobs because I take so much time off. I kind of want celiacs because it is SOMETHING. Right now my docs think I am making my stuff up...ugh.