Caregivers Support Group
A voluntary caregiver is a spouse, relative, friend or neighbor of a disabled person or child who assists with activities of daily living and assists those unable to fully take care of themselves. The challenges of a caregiver are unique and sometimes it's hard to find people to talk to who know what you're going through. Join the conversation and find others who...
New here and hoping to find some support. I'm 38 years old.
My husband and I have been married for 20 years this December. He has myofascial pain syndrome which causes chronic migraines. Started about 15 years ago and has progressively become worse. He is now on disability. He is under pain management care and takes pain meds just about daily. Fentora, roxycodone, valum, etc. He spends many hours a day in bed and when the pain meds don't work, we are off to the ER for dilaudid thru IV. There isn't a moment that goes by that he's not in pain.
I work full time and we have 2 kids, 10 and 14.
I was diagnosed with Fibromyalgia about 7 years ago, so my energy level is not ideal for working full time and helping out at home. I spend a lot of my home time rubbing his head or neck, sometimes in the middle of the night. He rarely sleeps well at night.
I know he suffers greatly, and I do wish he could find relief, but I guess I need to find people I can relate with. My pains (whether physical or emotional) get secondary attention, if at all.
Thanks for reading.
My husband and I have been married for 20 years this December. He has myofascial pain syndrome which causes chronic migraines. Started about 15 years ago and has progressively become worse. He is now on disability. He is under pain management care and takes pain meds just about daily. Fentora, roxycodone, valum, etc. He spends many hours a day in bed and when the pain meds don't work, we are off to the ER for dilaudid thru IV. There isn't a moment that goes by that he's not in pain.
I work full time and we have 2 kids, 10 and 14.
I was diagnosed with Fibromyalgia about 7 years ago, so my energy level is not ideal for working full time and helping out at home. I spend a lot of my home time rubbing his head or neck, sometimes in the middle of the night. He rarely sleeps well at night.
I know he suffers greatly, and I do wish he could find relief, but I guess I need to find people I can relate with. My pains (whether physical or emotional) get secondary attention, if at all.
Thanks for reading.
So glad you found us. Please feel free to post, vent, or just ask for advice....that's what we're here for !
Again Welcome !! :-)
Hugs, Gwen
I can definitely relate to being a caregiver for someone with constant pain. My husband was hit by truck, had 2 ruptured discs & 3 spine bones knocked out of alignment. He had spinal fusion surgery & it did not help at all. He's living the rest of his life with the searing pain & post-concussion syndrome headaches. He rarely sleeps a whole night through & is taking Vicodin, Flexeril & Fioricet. I have to help him in & out of the shower, help him get dressed & drive him everywhere. I can relate to your personal situation as well. I don't have Fibromyalgia, so I don't know your own pain; however, I have Epilepsy (luckily 2 years seizure free, but I'm still taking maintenance meds for a while longer). The meds make me incredibly tired. That puts me in the same tired boat as you with my needs last, too...
You're in the right place.
MelodyJane
Thanks for the warm welcome.
Hugs, Gwen :-)
I know you will, too!