Wow. It sounds like you have an awful lot on your shoulders. I guess my advice would be, first, google "precrition assistance". There are a number of programs through the drug companies themselves to help folks in your situation lower the cost of their medications. If you can get some help there, that might ease some of the financial pressure. Next, you HAVE to find something for yourself or you will burn out. If your husband can be left alone for a few hours, then you need to find a volunteer opportunity or a club, something you can do once or twice a week that won't cost anything, but will get you out of the house to have your own time and meet new people. If your husband needs constant assistance, you might want to contact your local hospice group and ask about respite care. These groups usually accept medicare. I don't know what your husband's diagnosis is, but if it's something that is, eventually, fatal, he may even qualify for more hospice care, including prescription help. My Dad qualified for hospice because of his cancer - even when it was in remission for 3 years. I wish you the best of luck!

I'm caring for my husband also, he has dystonia which affects mostly his face, eyes, right hand, speech, balance. I got a dog recently so I can feel loved again. These days I just feel "used". Our income situation is good and we have two grandchildren to brighten out lives, unfortunately our daughters are less than sympathetic. They have busy lives and don't have time to pay attention to what is going on at home. I too wonder about the future. Is this how it is going to be for the next 30 years - me doing household chores, yardwork, etc and he sits in his recliner, struggeling to see and speak, getting a glass of juice from the kitchen to the recliner a majoy event? It is tiring, I'm sorry I couldn't help, I'm in the same boat.

I have been my hubby's caregiver for 26 years.......married for 48. Paraplegic for 26 years the most difficult time has been since I suspected dementia/alzheimers in the early 2000's. Not diagnosed officially until 2009 with Vascular Dementia.

I look back on my life and wonder how I have done it; but look forward and wonder how I am going to continue. I have been on anti-depressants since 2001 and will probably be for the rest of my life.

I really feel for you and what you are going through. All of us as caregivers tell others they need to take care of themselves but most of us don't do such a hot job at it ourselves. I find myself sleeping a lot as well (when he isn't having nighttime delusions or hallucinations). You may want to see if your doctor will adjust your anti-depressant or add something new. I am not a big fan of drugs but I don't believe I could have done this the last 10 years without them.......hugs and prayers......Jeanmarie

You really need a litle fun. I have a few suggestions, if you have the wherewithal to follow up. Try your local library, they usually have events, talks, movies, or classes for seniors and they are free. There are also senior centers that have a sliding scale or free events, and even lunches. I have volunteered at some of them.
For yardwork, can you barter with someone in your neighborhood? Maybe you can babysit a child or help with a project or some skill you have. Sometimes neighbors will do things for free if they know of your need.
Flowers - I know people get free cuttings and plants off craigslist or freecycle.org.
My kids have played their instruments free for seniors, it was organized either by their instrument teachers or myself and other moms. It's not virtuoso, but it's cute!
If you message me your zip code, I will search for things for you.