Brain Injury Support Group
Traumatic brain injury occurs when a sudden trauma causes brain damage. TBI can result from a closed head injury or a penetrating head injury. Symptoms of a TBI can be mild, moderate, or severe, depending on the extent of the damage to the brain. Outcome can be anything from complete recovery to permanent disability or death. A coma can also affect a child's brain.
Im speechless (in a good way.) I had NO idea so many other people were experiencing the same symptoms that I have!
I have a hard time reading and thinking still and the doctors didnt give me any information about TBI at all. They sent me home from a car crash without a brain scan. I collapsed a week later and they did a scan and saw that I had a brain bleed. When I was discharged, no one told me to expect ANY of this. I found out over the next few weeks that my speech was disrupted, my vision (I can hardly look at anything), memory terrible, bad insomnia, head pain, neusea, anger, cant do things for myself without getting confused, changes in colors and pixilated vision, bad attention span, cant read well, cant process basic information the same way.
Did anyone else have to figure this out on their own because the doctors didnt mention it?
Its been 3 months for me and its not getting better. They told me it should go away in 3 months and Im still scrambled inside. Im a big mess. Im learing to do things different to get through my day. I can work, drive or leave the house for very long. The stimulation shuts my brain down and I just can do anything. I go on overload so easily. Basic tasks seem to taxing and so difficult. Does anyone have any advice they can give me? My doctors dont have any advice or any direction. Any of this sound familiar?
I have a hard time reading and thinking still and the doctors didnt give me any information about TBI at all. They sent me home from a car crash without a brain scan. I collapsed a week later and they did a scan and saw that I had a brain bleed. When I was discharged, no one told me to expect ANY of this. I found out over the next few weeks that my speech was disrupted, my vision (I can hardly look at anything), memory terrible, bad insomnia, head pain, neusea, anger, cant do things for myself without getting confused, changes in colors and pixilated vision, bad attention span, cant read well, cant process basic information the same way.
Did anyone else have to figure this out on their own because the doctors didnt mention it?
Its been 3 months for me and its not getting better. They told me it should go away in 3 months and Im still scrambled inside. Im a big mess. Im learing to do things different to get through my day. I can work, drive or leave the house for very long. The stimulation shuts my brain down and I just can do anything. I go on overload so easily. Basic tasks seem to taxing and so difficult. Does anyone have any advice they can give me? My doctors dont have any advice or any direction. Any of this sound familiar?
My injury was pretty severe, but even knowing how injured I was, I still don't feel like I was given enough information. Everyones injury is so different, so finding answers is pretty dang difficult. I'm glad you are being proactive and looking for answers on your own.
Best wishes to you on this journey!
I'm so very sorry to hear about your injury.
What you experienced - about being released from the hospital and then, subsequently, collapsing, is not unusual at all. I could tell you my own horror story.
You do need to get treatment for your injuries. Are you under the care of a Neurologist, Neuropsychologist or Physiatrist currently? You need to have someone overseeing your care and ensuring you get the therapies you need.
All of the symptoms you've described are "par for the course" with a TBI, unfortunately. We're here for you.
I just wonder if its ever going to completely go away. I cant image my life the way is was before my tbi. This has been life changing and I am an entirely different person. Do any of you feel this way?
Thank you for your support.
I was in a a car wreck in 2008. The EMTs were so busy taking care of the drunk driver who hit me, they completely left me at the scene unattended. To me this said I must be fine so I did not see a doctor for 10 days. Looking back I now know what a mistake that was...it took another two weeks before I got to a neurologist. Better late than never I guess.
I do hope that you are getting the proper treatment now, as was said earlier. I met a psychologist who specializes in both TBI and PTSD...she saved my life!
Take it one day at a time...slow down and find ways to relearn and cope with your new challenges. It takes time, but it is possible. Above all, remember to take care of yourself. physically, mentally, and emotionally.