From what I found it's Uncoordinated movement is due to a muscle control problem that causes an inability to coordinate movements. It leads to a jerky, unsteady, to-and-fro motion of the middle of the body (trunk) and an unsteady gait (walking style). It can also affect the limbs.

I don't believe I have that problem but my sense of balance seems to have been affected by my brain injury.

That's how this whatever, have no confirmation yet, Dr on hols, and don't want another, started. Then stiffness, walking, stand legs apart slightly to help balance, and onwards from there over time. Just speeded up last few months to how now. And its scary. It is a nuro thing.

I don't have that, but hang in there buddy!!!!!! I'm so sorry you have this or ? issue,

Love Anita

Aust, I had a friend on another tbi site that had this and got botox shots for it. Hers was much worse, and every few months would get the shots in her scalp.

Ted, I have balance problems too. I was a speed skater in college, so thought I"d try roller blading - seemed to be the same thing as ice skating. I tried, and couldn't stand on them. I finally asked a friend to help me . She happened to be studying for her PhD in physical therapy, and after falling several times with me, declared 'you have no vestibular system". In other words, no balance. She gave me some exercises to help, but I still can't stand on skates ,
Johanna said one of the things I had to do ( my mother said the same thing to me !) was , when I stand from a chair, stop and get balanced before walking . I always stand up with one foot ahead of the other ready to take the first step . I also walked too fast and didn't pay enough attention to the ground and the bumps on it. ( I once was walking so quickly that I fell over a curb I didn't notice) . So I"ve slowed down, but still have to be careful .

thanks. Suggested a exercise bike to my Dr thinking it may help get things sort of going right. He looked at me with a grin, been my Dr for years now, and Idont want another, in true aussie style he said simply, You would fall off the damn thing.

I don't remember one thing but I heard after my head injury while I was recovering in the hospital, they had me in physical therapy. They were teaching me the basics there, such as how to walk again or so I was told.

Got my latest mri results. Showed little freckles of white over my brain. No dementia. This in our terms means these areas are not getting enough blood and oxygen that they need, and interfering with what controls movements. And this is causing the ataxia, which is a movement disorder. Urgent apt with a certain nuro in a couple of days, and other appts. No cure, and will deterate he tells me. But at least I now have cause for this. Can work from there now.

How is it doing today? Anita

See nuro tomorrow. Should write down the main things I want to ask.

Saw nuro, didn't want to say anything till blood tests. 10 vials later, never done that many, felt awful few minutes after, so had a drink and something to eat, some are going to take 2 months, haven't a clue what. said testing for everything. Yesterday had apt with head Dr at hospital, a physian, seen him before, brilliant man. Looked up my mri and stared at it, head resting in hand, then went to blood tests back so far, said more to come in. Kept gong over things, then said I have absolutely no idea what this is, so I am sorry, but cant help you. Hopefully nuro will get something with other tests for you. So hope he does, as its progressing, Agree ataxia, not the cause. May be something genetic, as found a sister the same, only she doesn't go to Drs.

(((Hugs Aust))) Just one night of bad sleep, and my balance/coordination is affected. I sure hope these tests give you some answers, it's hard to wait for results too. Keeping you in my thoughts and prayers!!

Is this conversation still active?

I was born with ataxic cerebral palsy.

I am having trouble sleeping, and was doing a google search and happen to stumble a form of ataxia called Spinocerebellar ataxia, Apparently gets worse over time.

Unlike cerebral palsy, by itself.........Which does not worsen over time, so I have read anyway.