Bipolar Disorder Support Group
Bipolar disorder is not just a single disorder, but a category of mood disorders marked by periods of abnormally high energy and euphoria, often accompanied by bouts of clinical depression. This is the place to talk about your experience with bipolar disorder, learn from others' experiences, and find support.
some questions: how old are you? The younger you are the less advisable this last resort treatment is, in my experience
also: how many medications of combinations of meds have you tried so far with this 'depressive episode that won't go away'??
Are you extremely suicidal- as in have already carried out 'non survivable suicide attempts' recently (this would give such drastic & controversial & often damaging (long term) treatments as ECT greater weight as an option for your treatment
If few or none of the above fit- recommend you consult with other pdoc's before electing for this risky treatment option- it does help 'some' in the short term (ECT) no study anywhere demonstrates this temporary reprieve from depression lasts very long (hence need for life long maintenance treatments for so many-that are very disorientating, for many again
I lost 5-7 years of memory permanently after ECT & the doctors who gave it to me have since apologised to me & told me I acquired profound memory loss/brain damage (not just retrograde- also with forming new memories & more)
Someone who works in NYC with my sister (I have corresponded with him, incidentally- we had very similar experiences) anyhow, he wrote a book about the damage he incurred from ECT (he lost 12 years of memory)
I could go on. If you are at death's door, perhaps, after researching ECT to ensure you can make a decision with truly informed consent then you may choose to do ECT.
If you can hold on a while longer despite your depression then I urge you to try another doctor & get a second opinion & find out what other drug combinations you could try.
ECT is a short term balm..once it wears off you still need to find med combo that can bring you out of these lows & keep you out of them.
I'm not totally against ECT but it would be my very very last resort, like iif I was in a catonic depression of something of the like!
I do hope you feel better soon!
Men and women I'd held conversations with, shared experiences and memories with were returned to the ward often unable to speak coherently for days after treatment. Some couldn't remember their own names, and had lost chunks of significant memories and who knows if they were ever able to rebuild the neurological connections needed for recall. One heartbreaking moment occured during the weekly visit of one patient's wife. She came faithfully, but the hospital staff was very careful to make sure she was not visiting on ECT days or right after. Someone messed up the scheduling so her husband had ECT the day before. He was wheeled into the visiting area (again drooling, head sagging because he lacked the muscle control in his neck to support his head) and he didn't know who she was. He couldn't articulate well, but he was sure she was a stranger. Two days previously he'd pulled out her picture during a group session and bragged about how lovely she was, how she'd supported him, and was a wonderful mother to their two grown sons. They'd been married straight out of high school and he was looking forward to his release so they could belatedly celebrate their 20th wedding anniversary. If I hadn't been convinced before, the aftermath of that visit would have sold me on the evils of ECT. He was heartbroken when he realised what she'd seen and how unresponsive he'd been. He also admitted that he'd lost chunks of his memory, but was too ashamed and embarassed to ask about what he was now missing.
And a dear friend's youngest sister was treated with ECT in her teens. A very very poor decision on the part of her parents and clinician. In the aftermath she experienced increased suicidal ideation, lost so much time and memory that a previously bright (if depressive) young woman was unable to scrape up the concentration and will to even complete high school. I firmly believe that her disorders were debilitating, but feel that repeated ECT while her brain was still developing is what has ruined her life.
I have made the decision, in a good place, with lots of research - I will have ECT.
For me, you cannot make decision in Crisis - I try to have my Plan B's ready, before I need them - to decrease hard choices..... There are a LOT of success stories - as well as horror.
ECT has come a LONG way, since it was an actual theory or abuse. Carrie Fisher wrote a good book about her journey, and it shares the Good, the bad and the ugly - with much insight and laughter.
I think its hard to get good feed back, because so many people - hate it, and want to Pass that Word - more than the people who benefited, and did well... they are quiet, living with a better life.....
The side effects were small for the price of what I got for it. I don't remember much of 2010. But I took my Pdocs advice and wrote down important info. and memories down before the procedure so I have it, I just can't find it in my head.
Good Luck.
Kat
Did it as a last resort, been on many med combos, hospitalized many times, several suicide attempts, but my advise is not to have it, in my opinion it is inhumane, and haven't heard only but one person who it helped. More negatives then positives. Good luck in whatever decision you make, and hope u feel better soon. hugs,tedi
Me? The mere thought sends a jolt through my whole system....and I'm not talking the good good vibrations of kundalini.
Any one that willingly accepts this procedure as an alternative have both my sympathy and admiration...not to mention stones bigger than this bolder that sits up upon on my shoulders.
Best of luck to you, whatever you decide.
fdl
Ginawonders- my pdoc works at a teaching (mental) hospital that does lots of studies on ECT (& lots of ppl are given it). Actually, there are still major problems with the memory fallout with newer forms of ECT ..it's an ongoing issue. Not just a 'scare campaign'
nn, thanks for the link, I needed that. I'm willing to admit that The Bell Jar and a six worded hollywood "shock value story" closed my mind on this issue. I've leaned on a few pasture fences to know that's enough to back you off, but I've also experienced the numbing paralysis caused by an arc welder or even a car battery so my mind was shut pretty tight.
After reading the link you provided, you do seem on the fence with this issue yourself, and I think I'll join the other birds on the wire and watch for a while yet. It's not like an oxygen bar to be certain but who knows what lies down the road.
Seems people, especially those administering the treatment, must proceed with great care and serious caution.
I would consider it if I don't get back up off my haunches by my 55th year. This is just a few snip-its I took from the piece as I read it. I went for the more biased side to help bring balance to an unbalanced view of this possible and plausible treatment.
I did find the beginning riveting. Intrusive thoughts that any sane person can have but a civilized mind would dismiss...perhaps to do with her post par tum issues.
Yet she seemed to become worse once she began a course of medication. I'm kinda skeptical of the ease with which these decision may have been made. Chicken and egg thing I s'pose.
But yes thank you for the link, and the introduction to it's source. The fist bit here I saved because it just seems to sum up the human condition so succinctly.
[ And yet the sheer array of experiences - good, bad and horrific - make risk-benefit analysis fiendishly difficult, particularly as some people inherently cope better than others. ]
[ "They told me, 'There are negatives.' I said, 'Like what?' And they said, 'With short-term memory; you might not remember all your time here.' And I said, 'What, and you mean that's a bad thing?'"]
[ "I also tell all my patients that I have bipolar. Some people don't come back, but for every one that leaves, you pick up a dozen who hear about you and like the frankness. It helps them relax.]
[ "We know a lot about how it works," Loo says. "But it's like a billion-piece jigsaw puzzle. Just because I can't tell you where every single piece goes doesn't mean the treatment isn't valid.
Besides, she says, no-one understands exactly how a general unaesthetic works, but "you wouldn't have your leg amputated without one".]
[ He is not 100 percent, he says, but he's no longer suicidal. He can talk. He's back to eating. The ECT has given him, "an opportunity to be, to be..." He pauses. "Well, it gives you light at the end of the tunnel.
It gives you an opportunity to be better, I say.
"Yes, that's it," he says, with a flicker of a smile. "Better."]