Atrial Fibrillation (AFib) Support Group
Atrial fibrillation (AF or afib) is an abnormal heart rhythm (cardiac arrhythmia) which involves the two small, upper heart chambers (the atria). Heart beats in a normal heart begin after electricity generated in the atria by the sinoatrial node spread through the heart and cause contraction of the heart muscle and pumping of blood.
New Guy: 6 Months Post ablation
Steveinnsr
Greetings everyone. I've read through several threads here and I'm very impressed by the kindness, compassion and support you offer to each other. I look forward to sharing information and ideas with you. Like so many here my journey with AFIB has been a difficult one but I feel better now than I have in 15+ years. Treatments are improving and more and more Physicians are gaining the skills necessary to improve the quality of life for AFIB patients.
Yesterday marked 6 months since my catheter ablation to treat my paroxysmal AFIB. With the exception of a few minor arrhythmias within 8 weeks of the surgery I have otherwise been AFIB free. My story is similar to many who have struggled with this unwelcome guest in our lives.
My AFIB started when I was 38, in a couple of weeks I'll be 55. I've been a very active person my whole life and always kept in shape, mainly running 10 - 12 miles a week in the years prior to diagnosis.
In the beginning anxiety was my main symptom, the sensation was strange and frightening but in time I came to grips with it. Once I knew it would pass and my heart would beat on I was ok with the help of a daily beta blocker(metoprolol) and 325 mg aspirin. I tried for a very long time to identify the triggers for my episodes and I kept a log of each episode and the length of the episodes. I eventually abandoned the search for rhyme and reason with my AFIB and accepted it as a condition that I would just have to deal with the best I could. I did eliminate caffeine(I sure miss that good cup of morning Joe) and for about 9 years I was able to cope fairly well.
Then things changed gradually. My AFIB became more frequent and the episodes lasted longer. Instead of hours I was starting to string together days. The worst part was that I went into AFIB every time I would lay down to sleep (if I wasn't in AFIB already). I was sleeping on average of 2-4 hours a night for 5-6 years and there were many nights I didn't sleep at all. Many times I would go to work with one to two nights in a row of no sleep and surprisingly I was able to function decently. The brutal cycle of no sleep causing more AFIB and the AFIB not allowing me to sleep had now become the norm. I was now in AFIB 60-70% of the time. As bad as things were I was still dead set against taking an anti-arrhythmic medication, mainly in fear of the side effects and thought of hospitalization to start the drug.
In July of 2011 I suffered a TIA. I don't like the term "mini-stroke" because I don't see anything mini about being paralyzed and unable to speak. My CHAD score was as low as it could go and yet I still had the TIA, aspirin was obviously not enough. This event changed everything, and was a huge wake up call. I realized then that I had accepted my condition to a fault. I essentially coexisted with it as it slowly started to choke out my quality of life and nearly worse. I reached a point where enough was enough, I wanted to be able to do the things I enjoyed and I wanted to sleep again.
In the past 10 years I have been blessed with the treatment of an amazing electrophysiologist and the finest physician I've ever known. Together our plan was to try and wait for the ablation procedure to become less risky since it was in its infancy at the time I was diagnosed and I was young and in good physical condition. My EP was one of a few leading pioneers in the field and I asked him back then if he would be my surgeon if it came to that and he said yes. 6 months ago he made good on his promise and today I can lay my head on the pillow and night in a quiet room and hear nothing but the normal sinus rhythm of my heart. It's like a sedative, I had forgotten what it was like to sleep for 6 hours in a row. Words cannot describe.
I've rambled long enough, and I apologize for that burning sensation in your eyes. :-) I'll be happy to give more details on my experiences and ablation or help in any way that I can. I hope that knowing my story will give those struggling some encouragement and hope for better days ahead. Best wishes everyone.
Steve
Yesterday marked 6 months since my catheter ablation to treat my paroxysmal AFIB. With the exception of a few minor arrhythmias within 8 weeks of the surgery I have otherwise been AFIB free. My story is similar to many who have struggled with this unwelcome guest in our lives.
My AFIB started when I was 38, in a couple of weeks I'll be 55. I've been a very active person my whole life and always kept in shape, mainly running 10 - 12 miles a week in the years prior to diagnosis.
In the beginning anxiety was my main symptom, the sensation was strange and frightening but in time I came to grips with it. Once I knew it would pass and my heart would beat on I was ok with the help of a daily beta blocker(metoprolol) and 325 mg aspirin. I tried for a very long time to identify the triggers for my episodes and I kept a log of each episode and the length of the episodes. I eventually abandoned the search for rhyme and reason with my AFIB and accepted it as a condition that I would just have to deal with the best I could. I did eliminate caffeine(I sure miss that good cup of morning Joe) and for about 9 years I was able to cope fairly well.
Then things changed gradually. My AFIB became more frequent and the episodes lasted longer. Instead of hours I was starting to string together days. The worst part was that I went into AFIB every time I would lay down to sleep (if I wasn't in AFIB already). I was sleeping on average of 2-4 hours a night for 5-6 years and there were many nights I didn't sleep at all. Many times I would go to work with one to two nights in a row of no sleep and surprisingly I was able to function decently. The brutal cycle of no sleep causing more AFIB and the AFIB not allowing me to sleep had now become the norm. I was now in AFIB 60-70% of the time. As bad as things were I was still dead set against taking an anti-arrhythmic medication, mainly in fear of the side effects and thought of hospitalization to start the drug.
In July of 2011 I suffered a TIA. I don't like the term "mini-stroke" because I don't see anything mini about being paralyzed and unable to speak. My CHAD score was as low as it could go and yet I still had the TIA, aspirin was obviously not enough. This event changed everything, and was a huge wake up call. I realized then that I had accepted my condition to a fault. I essentially coexisted with it as it slowly started to choke out my quality of life and nearly worse. I reached a point where enough was enough, I wanted to be able to do the things I enjoyed and I wanted to sleep again.
In the past 10 years I have been blessed with the treatment of an amazing electrophysiologist and the finest physician I've ever known. Together our plan was to try and wait for the ablation procedure to become less risky since it was in its infancy at the time I was diagnosed and I was young and in good physical condition. My EP was one of a few leading pioneers in the field and I asked him back then if he would be my surgeon if it came to that and he said yes. 6 months ago he made good on his promise and today I can lay my head on the pillow and night in a quiet room and hear nothing but the normal sinus rhythm of my heart. It's like a sedative, I had forgotten what it was like to sleep for 6 hours in a row. Words cannot describe.
I've rambled long enough, and I apologize for that burning sensation in your eyes. :-) I'll be happy to give more details on my experiences and ablation or help in any way that I can. I hope that knowing my story will give those struggling some encouragement and hope for better days ahead. Best wishes everyone.
Steve
Penny
Sorry about the TIA, that must have been tramatizing for you. So GLAD to know all is well Today! Happy to have you posting with us~
Penny, I had my ablation at MUSC(Medical University of South Carolina) in Charleston, SC. My doctor is Dr. Marcus Wharton. I'm so blessed to have received his care and treatment through all of this. I admire so much about him, his compassion and kindness, his incredible dedication to his work and of course his amazing skill. I can't imagine how it must feel to touch people's lives in such a profound way. The entire MUSC staff at the Heart and Vascular Center were incredible as well. When I arrived the day of my procedure I was very anxious and their kindness and understanding was exactly what I needed. I stayed one night for observation and everyone looking after me was so professional and caring.
jb, thanks and congrats to you on your five years of NSR. That's so inspiring and boosts my optimism for what lies ahead for me
yogacat, I've been on Pradaxa twice daily since my TIA and will remain on it indefinitely. So far I'm tolerating it well. I only wish that I had been on it or had the ablation a year earlier and I would possibly have avoided the TIA and the need for an anticoagulant now. I'm happy to be off the beta blocker now and fortunate that my blood pressure has remained normal in its absence. The TIA while very unfortunate was a turning point for me, one that got me to where I am now. I did try an anti-arrhythmic (rhythmol) prior to ablation but the side effects were bothersome and it wasn't terribly effective. I went back on the rythmol post ablation to calm my heart during the initial healing phase. Once I stopped it I had a couple of minor episodes of AFIB but I reverted to NSR on my own and as quickly as they came they were gone.
Petey, I'm back to running again but mixed with speed walking. I alternate the two each evening. My goal is to get my heart rate up and promote HDL production for my arteries' sake. At 54 I'm pampering well-broken-in knees and a lower back so no more distance running at a pace to beat my personal best. I'm also a nature and astro photograher hobbiest. My nature work gives me added exercise with long hikes and at times long crawls to get close to the wildlife I like to photograph.
Thanks again everyone, let me know if I can be of any help.
Welcome I'm new here too but been around for about 4 years at other forums. I too had a mini-stroke....God I posted the same I hate that word....it was actually a tiny mircovascular spot on my MRI. It was a weekend of 4 days of on and off afib this past labor day weekend and on Wednesday Sept 5 just when I was getting to leave work something bizarre happened....I lost my chain of thought and my bosses were speaking to me and all I could manage is a stupid goofy smile at them which last about 10 mins.
It resolved itself before the paramedics arrived. I too was a CHADS 0 score, my blood work 2 months earlier was excellent even my cardiac CRP was .99 very low inflammation. There was no reason for my stroke.....but here we are. I'm on Xarelto probably for a lifetime too. I wish I had done something earlier to avoid this but at least its an easy drug to use. I've been taking Flec now for 18 months and it pretty much controls the afib. Consulted with 3 EPs Dr Reddy and Dr Steinberg here in NYC but still waiting on the FIRM but might have to pull the trigger first with a PVI. Dr Wharton is excellent from what I've read. Anybody that thinks that because your CHAD score is 0 better rethink that if you're getting too much afib.
Just curious what did Dr Wharton say about your anti-coagulation long term? For life or after diligent minoring can you come off the blood thinners? Also aspirin is now not recommended for afib stroke protection.........
In any case congratulations and keep us informed.
Thanks for your reply. Sorry to hear about your difficulties with AFIB. I'm in total agreement about the illusion of low risk when it comes to a stroke. In retrospect I should have opted for an anticoagulant earlier on but my risk was so low I worried about the risks of bleeding.
A TIA is terrifying, no doubt. I was walking into a grocery store when mine occurred. I felt strange and realized that I was unable to move my left arm. I lifted it with my right arm and it dropped and felt like a piece of rubber. I knew what was happening so I walked over to a cashier and tried to tell her I needed an ambulance. The voce that came out of me was unrecognizable and no where near sounding like language. I had to pound my hand to et her attention and I was able to mouth 9-1-1 and the word Stroke. By the time the paramedics arrived I regained movement of my arm and my speech. I spent the next 7.5 hours in the emergency room after a ride in the ambulance. My CAT scan was ok but an MRI the next day showed two spots, one that couldn't be discounted as being an aneurism. A little more worry to add to the mix. I underwent an angiogram CAT scan next to investigate the second spot. It turned out to be the same a the first spot. So I had either thrown two clot fragments at the same time or had another incident and didn't know it, possibly while sleeping. It took a while to get my energy back but I'm very fortunate to have suffered no permanent physical damage.
Dr. Wharton has recommended an anticoagulant indefinitely. My 30-day heart monitor showed zero AFIB but with my TIA history I'll need to remain on Pradaxa. I'm happy to have eliminated the beta blocker and hopefully one day the Pradaxa won't be needed.
Welcome! That is some story you have there. I also used to have all of my episodes during the night which made it very difficult to sleep. I never wanted to close my eyes. Funny, now my episodes almost never start during the night but you never can tell when it will happen. Like you, mine started out here and there for a few hours at a time but have progressed to 24-48 hours at a time. It has become too much and my ablation is scheduled for January. Thank you for giving us all a little more hope by telling your story. I look for ward to hearing more from you!
Kelly
I have been on Pradaxa for almost 2 years... no problems other than anxiety after watching lawyer advertisements about Pradaxa.
Anyway, have you ever checked out athlete's heart or Dr John Mandrola's website? Good stuff for afibbers who are runners or any type of endurance sports.
I have alot of running miles on me over the years.
petey
Welcome to the group! Sorry to hear about your problems, but so happy to hear the ablation worked for you. Your EP sounds tremendous and it means a lot to have confidence in him. That TIA was a wake-up call. Hopefully you are on the right track now.
I had an ablation in March and was on Pradaxa and Tikosyn before that. I've had a few bouts of a fib, but it's a LOT better, thank God. I am getting a heart monitor tomorrow to track my progress and find out what these "blips" are.
Thanks for sharing!!