Atrial Fibrillation (AFib) Support Group
Atrial fibrillation (AF or afib) is an abnormal heart rhythm (cardiac arrhythmia) which involves the two small, upper heart chambers (the atria). Heart beats in a normal heart begin after electricity generated in the atria by the sinoatrial node spread through the heart and cause contraction of the heart muscle and pumping of blood.
Here you will find many of us who experience AFIB in many different ways, but we are all still here and each managing in our unique ways. I have many of the symptoms that you describe. So do many of us. The anxiety is common among newbies (and even on occasion for us oldbies). As you learn how to take more control of this condition, your anxiety will subside. That doesn't mean it will go away completely, but at least you will get a sense of control and reduce it considerably.
I suggest you find a good cardiologist and see him/her on a regular basis so you can get a sense of the condition over time. AFIB can have an impact on your life, but with proper management, the impact can be minimized. It won't kill you. The first line treatments for AFIB are anti coagulants (you don't want a stroke, unfortunately the risk of stroke among AFIBERS is higher than the general population). And, a beta blocker (often metoprolol or atenolol). The beta blockers might be taken daily, or when you have an event (what we call Pill-In-The-Pocket). The beta blocker will slow down your heart rate. For some of us, the beta blocker actually converses us to sinus rhythm, but it is not a rhythm control drug. It might take some experimentation to find the proper dose for you. You don't want to slow your heart rate too much.
There are rhythm control drugs, unfortunately, many of these have side effects and don't work for all people, there needs to be a lot of experimenting to find what works. Then of course there surgery, from the mild (pulmonary vein ablation) to the more intrusive.
Since you are young (and I assume relatively healthy in other ways), the least radical approaches would probably be most appropriate.
Read the threads here, there's a wealth of knowledge in the group, when you have a specific question ask. When the anxiety gets to you, come to us, its a support group.
Ugh! I HATE reading these cases of people so young coming down with this terrible affliction! I was ticked at 56, so I KNOW you are upset at 38..and oh yes, our old friend anxiety! THAT is the killer. Many here have read my story, how I got so freaked out at one point that I had a full blown anxiety attack. I pray that you never experience such an event. Fortunately for me it was a one time event, and my wife was there to help me through it. My EP just doubled my dose of metoprolol for a short period, until the awful anxiety passed. You are so young, I would think ablation would be a piece of cake for you. Of course that is a major decision to make, but it looks like you understand the need for much research. And there have been so many advances in ablation over the past few years. I got the laser balloon ablation, which they have been using en France for over a decade. I was in the John's Hopkins study, but have yet to hear any results of that study...geez, now that I am talking about it, I need to email the EP nurse to see if they have published those yet.
All of us here will say a prayer for you...hang in there, and we look forward to hearing more of your story.
Bill
I am so sorry you are facing this so young, but from what I have learned it is manageable. I don't know much as I only entered this world in September.
laurab
I think the only chest pain I have had is from heart burn...and never in afib.
Anxiety gives me a very panicky feeling...and I shake.
My most common symptoms when I have an afib episode are pounding irregular heart beat, lightheaded and a "something is not right" feeling.
First off, just try to remember that afib in and of itself is not life threatening! Also try to remember that worrying never helped anyone with anything, ever. I know that's not easy to do when your heart is flopping around like a phone book in a dryer, but it's true.
You have to be able to access your mental happy-place when you start to feel those physical symptoms associated with anxiety. Otherwise, afib begets anxiety, which begets more afib, which begets more anxiety, and it just gets progressively worse.
Your life is certainly NOT over! I suppose its just taken a new, unexpected twist.
Sometimes doctors dont have enough time to really spell out what all this is about. They play it down because it is not life-threatening (although it feels like it is!). Symptoms can range from I dont feel a thing to I cant function which is a pretty wide range. Hopefully with time it will not be debilitating for you and you will be able to function and perhaps even rid yourself of it!
How often and long do you have a-fib?
You said that you were feeling better thats good, I hope it stays that way!
Take care,
atp (acrossthepond)