Arthritis Support Group
Rheumatoid arthritis is a chronic, inflammatory, multisystem, autoimmune disorder. It is a disabling and painful condition which can lead to substantial loss of mobility due to pain and joint destruction.
Vanyel
I am so frustrated. I have severe arthritis that the doctors can't define so they call it osteoarthritis but it comes with severe crippling fatigue, a host of endocrine failures, a worthless immune system, very slow healing or recovery from illness, etc. Anyway, at age 51, I am barely able to walk and have to use a cane. I am on pain management with large narcotic doses that is basically worthless. I've had one knee replaced 4 years ago now. I've had surgery on my ankle that made it miserably worse. At this point, my other knee is so painful I really can't stand it without the cane. The ankle is so bad, again, I need the cane. I have braces for both, but they really give very minimal help at this point. The foot on my other leg broke last November when I stepped on a nail and ultimately had to have surgery. It broke again this month just walking on it and is not healing. My spine is a disaster area - the low back disks are all dry and useless. The neck is so full of spurs and narrowing of the nerve openings that if my head gets off center at all my arms go numb and tingle and eventually become dead. I am really worried that I will not be able to keep working any day now and our whole life depends on my income. I have already gone back to school and gotten a new degree to change my job so that it is not physically demanding - at least as much so as it used to be. I have done all the different injections for the knees/ankles - steroids and synvisc etc. I have done all the different pain management drugs, therapies, etc. except accupuncture which is on my list of things to do. The doctors say the other knee needs replacement, the ankle needs to be fused or replaced, the neck probably needs to be fused. I cannot afford to take time off work for surgery after surgery. The ankle and knee would each require probably at least 1 month, more likely 2-3 months off work. I can't lose that income! And I doubt my job would tolerate such shenanigans. I keep trying to keep working through it and muddle along, but I'm beginning to feel desperate. I really like my job, really need my income. As it is though, I can't exercise, can't even walk my dogs and my life has become severely limited. I'm putting on weight like crazy. I don't know what to do .. .. . . how to get this 'fixed' so that I can go on living productively. I'm not ready to sit in a rocker and call it done. Do I put my job in jeopardy and go for the surgeries, hoping to get well enough to be able to walk and function again at an adequate level to work, exercise, etc? Or am I asking for disaster - having surgery and not healing, not ever getting functional again? Gawd I just dont know what to do. So, I'm ranting here........ sorry. Thanks for listening.
Vanyel
Vanyel
Posts You May Be Interested In
-
My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...
I have no fancy words of help, sorry. I can't say I have the same pain, I don't know. I can't even tell you much. All I can say I feel and know it is real for you the pain.
I just hope someday they will have answer for all of us that surfer thru all our pain.
I have no idea why your surfering so much? I wish I had the answers for all of us including you.
God Bless YOU
Bee
You sound much like me and some other folks I know.
I have a crappy immune system too.
My immune problem is from Common Variable Immune (Disease or Disorder) also known as CVID. There is a DS group for this too.
A lot of your symptoms sound like CVID.
Were you Immuno Globulin levels along with the subclasses checked?
I have OsteoArthritis and I think that is often a catch all term.
I have exhaustion.
I have all over body pain too.
I was told I have Fibromyalgia.
Do you make sure you stretch daily to keep yourself from getting worse? It has really helped me. It was very hard to do at first.
Hope today is a better day.
You say you don't heal well.
Do you think this is from the addisons meds?
My late best friend had Addisons.
I'll bet getting the treatmento of IVIG would help you heal.
You can always ask your doc to see what he/she thinks.
IVIG is IV form of Gamma Globulin.
I must take it very slowly with premeds.
My premeds are prednisone and IV benadryl.
I hope this helps.
I wish my bones weren't wearing thin and my joints weren't wearing out. Along with the overgrowth of bone, as in spurs etc. there's so much more pain involved.
I do have osteoporosis - have had quite a few spontaneous fractures in my ribs, and now my foot. Does not bode well for all the orthopedic surgery I need to get done.
As for the auto immune disease piece, they have tested me up one side and down the other and have found nothing. No signs of auto immune disease. They did treat me for RA for a while, but then decided I didn't have it after all. They have no clue. I still believe it is an auto immune thing - it just doesn't fit any of their textbook definitions. My brother has it too. They can't figure him out either. At various times they have said i could have CFS, fibromyalgia, inflammatory spondylosing arthritis, osteoarthritis, blah blah blah. Their idiot steroids put me in to adrenal failure which won't recover. Sometimes I think they have doctored me into all this. It just sucks.
And I still have no idea which way to go. The ortho said yesterday I should go on disability, get on medicaid, get my surgeries done and then, if able, return to the working world. UGH. That sounds ridiculous. There is just no good answer. I am so stuck.
I have the same disorders you have including more than one auto i
immune disorder and immune deficiency. I am being treated for Osteoperosis, Ostio Arthritis, Sjogrens, CFS and FMS, CVID and a bunch of other stuff. I am not able to return to work but I'd sure like too.
I wish you well and believe you can go to work once you get your other needs met.
May the Lord have Mercy on you and your struggles.
I'm here to support you as well as these other lovely folks.
Animal
i had to retire at 49 as couldnt do my work anymore, i would look into work comp in your state and know my rights and work comp retirement as nursing should be a cause i was in police work and got a pretty good deal on disability retirement atleast you should know your options for the future, also i just had tkr and 3 months out and its healing but no way could i work and walk alot yet, i will do the next one in feb and am hoping like u in a year i will be able to live a liltle more normal life im so tired of the pain and disability as im sure u are good luck
i was able to get a good enough deal to live comfortable i couldnt immagine working on feet 8 hours + 5 days a week
although i do charity work now and internet stuff after i recover from 2nd tkr id like to work part time but taking care of yourself is first
im so sorry u hurt so much and understand what its like frustrating to hurt 24/7 no one knows except somone whos been there, even my husband is ignorant after watching me i cry some times because im just so tired of this but are some good days i i live on hope of more good days i wish u the same hope and much healing