Ankylosing Spondylitis Support Group
Ankylosing Spondylitis (AS) is a chronic form of arthritis--it is an inflammatory disease that causes joints, cartilage or other fibrous tissue (such as ligaments and tendons) to turn into bone. Ankylosing spondylitis is part of the group of rheumatic diseases. The disease is characterized by progressive stiffness, tenderness, and pain in joints. Pain can be episodic and...
For years I have dealt with swelling in different places inflammation in my shoulders ankles knee. My muscle s are in such a state of spasm it's like touching a wall. Spasms are a daily way I live. Lately in my calves font of legs along the bone. I am on 75mg fentanyl and narco s but my bladder has started spamming o intensely , legs hands feet, neck, but now this month , it is uncontrollable horrible pain in my right hip unbearable! For a month I'm walking with a Cain and need a walker! Now after a month both hips are hurting rig is very severe! When
N I walk more getting thru the pain, I eases for a couple of days but it is there aching so mimes throbbing. It is in middle of buttocks mucsel front and side of hip s if touched it feels bruised . I can not cross my leg . Does this sound like AS pain ? My pain clinic said it is inflames as joint that everyone gets it if thier gate is off. Please share your pain story similarity. Please. Also my liver is inflamed and kidney . Nothing showed on a x ray.
N I walk more getting thru the pain, I eases for a couple of days but it is there aching so mimes throbbing. It is in middle of buttocks mucsel front and side of hip s if touched it feels bruised . I can not cross my leg . Does this sound like AS pain ? My pain clinic said it is inflames as joint that everyone gets it if thier gate is off. Please share your pain story similarity. Please. Also my liver is inflamed and kidney . Nothing showed on a x ray.
Hope it subsides for you soon
I'm sorry you go through all that pain.
As for your story-Yes-Yes and Yes.. years of the ankles and heel pain still always until this day. as for those spasms- I got some of this under a little bit more control from making sure I drink plenty of water and eat and take potassium - in pill form and or I start eating more banana's) it will really help with the spasms- ... The bladder has been bothering me for the last couple months and and off and on for years also. I have been to Doc;s everytime this flares and spasms - then they do the routine UTI check and there is nothing that shows up....My bladder always fills full and and aches-
I notice when the weather of the more steady rains are here, I ache more in my pelvis and hip area and it sometimes fills like a bladder infection and my kidney's lower back area aches & flame up even more with inflamation. You know I have a lot of bones spurs on my spine also and I have been wondering if this causes a lot of the spazzing of the bladder and the inside organ pain from the bone spurs hitting on certain nerves we have along our spine??? I don't know ?? and because of the bone spurs I have pressing on certain nerves causing the sciatica nerve pain that causes the buttocks muscle pain that runs down the hip to thigh and down leg.
You mentioned the bruising...I also feel bruised on boths sides of my upper thighs and hips.
I think everyone has some of the same and some their are different AS pain.
But wanted to share with you, because you asked, that some of your pain sounded familar to me.
I wanted to let you know your not alone and I feel for you.
I was diagnose with Ankylosing Spondylitis in 2000 and I also have Fibromyalgia - with a Celebri PsuedoTumor and the whammy of body aches and pains can get overwhelming! at times.
It does not help that my pelvic area was crushed from a car wreck when I was younger and as I get older the inflamation flares of arthritis in that area makes walking diffulcult as you mention. I reach for the cane or on a occasion the walker,....
You mentioned nothing showed up on your x-ray- Does your x-ray show bone spurs on your spine?...with the fusing?
I hope you start getting some releif soon.
Keep us posted.. . Take Care
Angels2u :)