Ankylosing Spondylitis Support Group
Ankylosing Spondylitis (AS) is a chronic form of arthritis--it is an inflammatory disease that causes joints, cartilage or other fibrous tissue (such as ligaments and tendons) to turn into bone. Ankylosing spondylitis is part of the group of rheumatic diseases. The disease is characterized by progressive stiffness, tenderness, and pain in joints. Pain can be episodic and...
I moved to Saskatchewan and have the best doctor. He does Osteopathic treatments, acupuncture, acupressure, sends me to get lab work and then goes over the results with me (makes photocopies too), shows me helpful ideas to do at home, and spends at least 45 minutes to an hour with me. I found his name on here from a list of "doctors who treat chronic pain".
I'll post the links here....most say fibromyalgia but they do treat chronic pain as well.
http://www.doctorsforpain.com/physicians/north_america.html
http://www.doctordirectory.com/doctordirectory/doctors/city.aspx?spn=Fibromyalgia&st=CA&stn=California&sp=490
http://www.co-cure.org/Good-Doc.htm
http://fmscommunity.org/findingadoctor.htm
http://www.med-help.net/Fibromyalgia-Doctors.html
http://www.familyvillage.wisc.edu/lib_anky.htm
http://www.glgroup.com/Study-Group/Physicians-who-Treat-Ankylosing-Spondylitis-(US)-8211.html
http://www.stanfordhospital.com/clinicsmedservices/coe/orthopaedics/spinecenter/patienteducation/ankyl
http://medicine.ucsf.edu/rheum/faculty/gensler.htm
http://www.spondylitis.org/
So far I know of 2 specialists that you might consider: 1) Rheumatologist; and 2) Spinal Diagnostics Specialist.
A.S. is a rheumatic disease. So a specialist in rheumatology is probably best to start with.
BUT, if your A.S. particularly affects your spine, neck, hips and related joints, then what other treatments could be available that are specific to the spine perhaps not considered or provided by a rheumatologist?
You might give a spinal diagnostics specialist (NOT to be confused with a chiropractor) the chance to give you a reason why you might benefit more from their treatments.
I plan to see both specialists, hear what they have to say and what their treatment options are for me. I especially plan to get one's opinion about the other specialty - and I will just go with what feels to be a better treatment for me based on what I find out.
Why I suggest a spinal diagnostics specialist as an option for treatment:
I was (by chance) diagnosed with A.S. by my pain management specialist (whom I was seeing for migraines.) I was telling him about some back and hip pain, along with family history of RA (though I don't have RA.) Well, it turned out his primary specialty was spinal diagnostics and treatment of spinal diseases.
Because he was very familiar with A.S., he knew to test me for HLA-B27 (since RA is present in my family.) I would have NEVER thought of a rheumatologist as the proper specialist for my back and hip pain.
Not all, but the majority of people with A.S. will test positive for HLA-B27. AND, HLA-B27 IS genetic. Being positive for this antigen can increase the risks for other associated autoimmune diseases (though A.S. is most common and this is nothing to panic over as I have for the last year while I researched this antigen.)
HLA-B27 is not a common lab test given by your doctor. I want my two girls tested (it can show up as early as age 12 I believe?) and their pediatrician does not do the test. I have mentioned my A.S. and HLA-B27 to every doctor I have seen and the only one who knew what they both were immediately, was my optometrist! (He warned me of the associated eye inflammation.)
Maybe this is more than you were looking for but nonetheless, I hope it helps. Good luck. Check out both specialites and call your own shots.