Amyloidosis Support Group
Primary amyloidosis occurs when the body's antibody-producing cells do not function properly and produce abnormal protein fibers made of antibody fragments. Some people with primary amyloidosis have a condition called multiple myeloma. The antibody fragments come together to form amyloid deposits in different organs, including the kidneys, where they cause serious damage.
Not available in Australia, but you can get it online from Hongkong.
Vitamin E oil is the only thing I have found to help with the itch. I have been reading a lot of research stating that a plant based diet helps with a lot of different diseases so that is what I plan to try this year.
For Topical, I use Clobetesol Cream 2x day (morning and at night) and I also use Sarna Lotion (over the counter by the Caladryl at the pharmacy). The menthol in the Sarna Lotion appears to help a lot.
Hope this helps. The steroid injections underneath the skin helps a ton.
Any of those who have talked about giving further updates on treatments you are taking, It would be nice to see how you are doing. Divenut, has there been any progress?