Amnesia Support Group
Amnesia (or amnaesia) is a condition in which memory is disturbed. The causes of amnesia are organic or functional. Organic causes include damage to the brain, through trauma or disease, or use of certain (generally sedative) drugs. Functional causes are psychological factors, such as defense mechanisms. Hysterical post-traumatic amnesia is an example of this. Amnesia may...
I do keep a list in my pocket for the worst days - Which will become fewer and fewer as you learn. (Half an index card)
You have Anterograde Amnesia
Step 1: Find your phone.
Step 2: Check the current time/date
Step 3: Follow your list for today.
Important things to keep in mind
#1: More time has passed than you realize.
#2: Chances are, you've already told someone the same information multiple times.
#3: When something triggers a memory, write it down ASAP.
I'd be happy to answer any further questions and I hope some of this helped.
I was born without a mental scratch pad memory and then at the age of 32 had a seizure and lost all long term memory.
How best too deal with it all ??????
Keep lists, diary's, iPads, become emerged in a lot of early intervention products in some ways they can be adapted to work for an adult.
QK
But memories don't make a personality - I most definitely have a personality! So do you, alexwood! Glad you have figured out ways to make life work a little easier.
I find it simpler to live a different kind of life than to try to compete in the real world. I try to live in the present and have that be good enough, let others do the dirty work of remembering every little thing that ever happened.
One issue is we have no medical support for this - no one to talk to us about it - no help beyond being told "amnesia is not well understood - no answers" which is very frustrating. My son is working with a music therapist 2 x weekly to help cognitive processing & memory. And after huge efforts to get my son's neurologist to make the referral - I did get him into occupational therapy for 6 sessions which helped alot - helped him realize how capable he is. But that has ended and now he's just sort of stuck & I don't know how to help him move forward. (Of course the Covid-19 shut down is stalling out every thing for the moment)
So I'd like to know what kind of doctors you work with? Neurology Rheumatology? Psychology? Some other specialty?
How does your doctor support you? Treatment? Medication? Goals?
Any other suggestions?
Thank you very much - Lulu