Alzheimer's Disease Support Group
Alzheimer's disease (AD) is the most common cause of dementia and characterized by progressive cognitive deterioration with declining activities of daily living and neuropsychiatric symptoms or behavioral changes. An early symptom is memory loss (amnesia), usually manifesting as minor forgetfulness that becomes pronounced with illness progression, with relative...
I was thinking about quality of life....what exactly does that mean. I'm sure it means different things to different people. I thought it might be good if we all shared what we think 'quality of life' means to each of us.
I think quality of life is 1st basic needs met: food, clothing and shelter. Then I think it means having loving, caring people around you. But it also means being able to still get around, go places (even if you may not remember) visit with others, be safe, be comfortable, have a lack of severe pain.
I think quality of life is 1st basic needs met: food, clothing and shelter. Then I think it means having loving, caring people around you. But it also means being able to still get around, go places (even if you may not remember) visit with others, be safe, be comfortable, have a lack of severe pain.
I think every single one of us here with a spouse with alzheimers knows deeply what you mean when you say "good days for us"...none of us are having the good days we'd planned and dreamed for at this stage of our lives.
All of us and our spouses, have been robbed of the futures we spent so much of our lives working toward and there is grief and anger mixed in that realization for most of us I'm sure. I know I have a lot of grief as I watch my hubby lose more of himself and I have a great deal of anger that all our plans and the things we anticipatd so eagerly will never come to pass.
Despite his low qol, he still retains that humour for which he was famous. A nurse tried to get a cup off him, and he put it behind his back. She reached behind to get it, and he put it round the front! It was a game of "cat and mouse" which I thought was rather clever for someone with advanced AZD!! Even though he doesnt know who I am, I think deep down he DOES. Recently a carer pointed to me on a photo and asked who the lady was, testing him, like. Gordon smiled, tears in his eyes, said, "That's my wife"! Following a fall and fit at his Residential Home he is now in hospital with a brain bleed and awaits a Nursing Home. I am sure we can find something suitable. I want the best for him.
best for our loved ones... sometimes we just don't know what that
might be.
It is nice your husband can still converse with you.
Let us know how he gets along and how you are doing, too.
Judy
I never know why I said That. But I Did..
I first heard that tearm 'quality of life'from the DR. You see the pup couldn't walk, see or go to potty with out my help. I know the pup is now with my partnerand keeping him company .
Chuck of Ohio