"Wait a minute let me get my hat and go with you"really not much happened . Of course what could I expect.THERE IS NOTHING! He is very nice and caring and also frustrated that there is little he can do at this point. He started shifting some of his caring to me!!! Very concerned about my position in all this and how I was coping. Called in a social worker to see if she might have any suggestions for helping me! She thinks my husband should be in day care at least two days a week preferably more, but at $91 dollars a day I just don't know. Shhe said "I" need it or I won't be able to go the distance. The Dr said that with his Parkinsonism getting so much worse right along with the Alzheimers that caring for him is getting more and more difficult. Yea I know but what can I do ....nothing! The problem is the body stiffens up with parkinsons and it is becoming very difficult to dress, bathe, etc as his body doesn't bend easily. He has lost 4 more lbs in two weeks , down to 139!!!!!!!! Poor guy.

sdaly in the morning I wake up and think OMG another day!!!! I hate to say that but it is getting to me really bad too , so my dear friend Deb I am right with you , if misery loves company you got it. ((HUGS)) Sherri (sherbear2)

We went to neurologist today and

Sorry for the jumbled reply .....the last sentence stating "we went to the Dr today" ended up at the bottom of my post??? Should have been right after "let me get my hat" ....sorry I should pay more attention to what I am typing. :(

lol..I just figured that out!. Was just going to say, nice that he is concerned about you and telling you what you NEED to do, but nobody can come up with a solution to HOW you do it when you are not made out of money.

I am so sorry you are all still having to go through all of this pain and misery.
Carl's suffering is over and the last couple of days it has been hitting me pretty hard that he is not here. I wouldln't want him back to suffer like he was, but I miss his presence and am sad to think what might have been without this God-awful disease.

the pain continues after they are gone but at least its not for them.
In time, mine will fade and I can come and go now which helps because when I stay busy, it is better.

I wish I could make it all go away for all of us.

Carolyn; I can only imagine the jumble of emotions you are going through. I pray every day gets a little better for you and you may soon enjoy the life you put on hold for so long. You are always in my prayers, especially now dear friend..........(((HUGS))) Sherri

I am SO WITH you! Only thing is i havent tasted any freedom!I am so burnt out. feel like running away from all my responsibilities. My Mom with end stage renal failure, my grandson with down syndrome, autism and juveneille diabetes, and most of all my DH with stage 5 alz.The past few days Ive been hit hard!

Ladies, what do we do when we run out of steam? I'm doing all the things I am supposed to, taking breaks, taking anti depressants, etc and yet here I am still burned out.

Deborah,
I am so worried about you. I have been where you are and I know it is very scary. Have you talked to your dr. lately? Maybe it is time to tweak your meds. Try things like relaxing music, bubble baths or just reading to get your mind off things for a few minutes at a time.
I know what you really want is for this all to go away, but we aren't in charge of that. If you are REALLY scared and thinking bad things, there is a hotline to call at the VA. Don't forget the power of prayer.
I wish I knew how to make it go away for you. Please take care of yourself. Try thinking of and making plans for Vegas. I can't wait to meet you and all our DS friends that can make it.
xo Carolyn

I wish I could make it better for all of us....I just stay so tired doing everything alone....I finally got the yard mowed yesterday but didn't have the energy to weed eat....Trying to get laundry caught up today.....
prayers for all.

I think that I do need to see my doctor or something, I just cannot pick myself up and last night I was really angry with him because he would not go to sleep until almost midnight!

Call your Dr. !!! Your meds need a tweaking asap.

Deb, do you have thoughts of suicide? I know I will occasionally but that goes along with my disorder and know when to take the thoughts seriously........ I hope.

See your Dr.~

Ok, I made an appointment with my doctor I agree I need to, thanks for everyone here who is supporting me.

Deb,

Saying a prayer that you will feel better......sending comfort and many hugs..... glad you are seeing doc.....

Good girl. I know someone who was put on Ambien to boost what she was taking. She said it really helped. I'm up to 4 mg. Paxil..... next step....Ambien.

I agree Strohm siad it perfectly!!!!

It is all getting to be too much and with no end in site! YThat sounds terrible to say and of course i am not wishing that but when you are living this life and it just goes on and on and on and never gets better only worse it starts getting hard to want to get up in the morning.

I too think its good you made a dr appt hopefully tweaking your meds might help. It is sad that getting away may have made it worse for you , getting a little taste of normalcy may infact have made returning to this harder. I haven't experienced that yet as haven't had an opportunity to get away but it does make sense.So what does this mean that even if we have a wonderful cahnce for a break that we shouldn't take it?

Di you feel the same way after your little tripd with Sharon? i sure hope the dr can help , please keep us informed.

Hang in there we all love you and completely understand as we are all there to or have been or will be or whatever........HELP!