Alzheimer's Disease Support Group
Alzheimer's disease (AD) is the most common cause of dementia and characterized by progressive cognitive deterioration with declining activities of daily living and neuropsychiatric symptoms or behavioral changes. An early symptom is memory loss (amnesia), usually manifesting as minor forgetfulness that becomes pronounced with illness progression, with relative...
Hi there,
I am new to this group. If anyone has any advice I could really use it, I will explain my situation...
We finally got my dad to go to a doctor where he was diagnosed with Alzheimer's and Diabetes. We did the whole, contact the doctor, have them call him asking him to come in for a routine checkup, have him come in and get diagnosed.
However, in order to be ruled "incompetent" for us to obtain legal guardianship to get him the care he needs, we were told he needs to return to the doctor for further testing. He went in for one of these next appointments, but they say he needs more. Now he refuses to go because he thinks the diagnosis is crazy. He thinks they are manipulating him because he forgot about making further appointments and then thinks they were trying to force him into it against his will when they call him to remind him about his appointment. He keeps threatening to report the doctors to the medical board. (He was also a doctor but had his license taken away when colleagues noticed memory lapses.) Basically in his mind, everyone who thinks he has memory issues is "crazy," and he expresses extreme hostility towards them.
He also has delusions and thinks that the original appointment to get him to see the doctor who diagnosed him was part of a plot created by a group of strangers who he thinks he met on a hiking trail and reported him to the doctor because they said they noticed "memory issues" and thought he shouldn't be out on the trail. He says he saw this group of people later in his bedroom and they were talking about killing him and stealing all his things. He often has delusions and hears voices of people plotting to kill him, and sometimes sees people who aren't there. So basically he has this idea in his head that there's a plot to get him to the doctor that was started by people trying to kill him. He's called the police on multiple occasions saying he hears or sees people who are planning to kill him but no sign of anyone is ever found... The police have told us we really need to get him into a home and they might report us to social services, but no one in our family has enough money to pay for a home for him or the legal power to force him to move into one.
I really don't know what to do. My dad is actually really lucid and intellgent in other ways, but he has these delusions. He's lucid enough that I don't think it would work to tell him we are running errands and then take him to the hospital instead to go to the doctor.
He also has a history of denial even before he had Alzheimer's. He beat my brother and molested me when we were children when he was drunk, but has always denied it. He denied he was cheating on my mom until she flat out saw his car parked at the other woman's house and confronted him about it. So denial behavior is not new.
I know this story sounds like I could be making it up, but I assure you, it is real and I am desperate for help.
My dad is kind of an a-hole and though there is a lot of resentment in my family towards him, we do want to see him get the proper care he needs. My sister (the one he didn't abuse) is currently living with him and caring for him, but my dad's finances are falling apart. He's had his driver's license taken away, and denies this until we show him the form to remind him. He gets extremely hostile and angry at any mention that he has memory issues, and occasionally physically attacks (especially my brother) when its mentioned.
Is it possible to get someone to the house to evaluate him to get him deemed incompetent? I honestly think it might be impossible to get him to the doctor to get the further evaluation needed to deem him incompetent and get him into a home. I think once he would see the hospital he would go nuts.
All of us kids are pretty young (in our 20s and early 30s) and we want to do things like go back to school and have careers instead of caring for him full time, but he can't cook for himself, forgets to bathe, wanders and gets lost, etc.
If anyone has any suggestions, I am in dire need of help and ideas. Thank you.
-
I know.....move on! But I just found Mr Ks Christmas gift. When we went to pick up his new EV in late Summer he sat in a white camero and I took his pic. This tiny hot wheels model brought back a happy memory
-
What is really important to me, body mind soul to have in my life at 72 to live my best life.Yes, some might remember Oprah saying "Best Life"...well the below show is from 2009, shortly after the 2008 crash where our country went into a tail spin with financial colapse.Anywho, the show is about 'what can you live without'...so I decided to keep this in mind as I go through my house trying to...


I had my mom put on Haldol with Cogentin to help minimize side effects.... She was combative at the time and it worked quickly
It's an antipsychotic so it should hopefully also help with delusions and voices
She was a little more lethargic however weighing the effects of all I thought that this was much better.... She was able to rest when she needed to......xo
We went through this for over 10 years. Getting help seemed impossible. One of the tricks of the paranoid schizophrenic we were told later (what she was finally classified as about the time she died; I cant say its 100% accurate though) is that they are paranoid and get really good at conning the professional caregivers - ie, the doctors.
How did we finally get help? Grandma got sick and ended up in the hospital for 4 days (flu or something like it as I recall; pretty standard thing with the elderly). Grandma couldn't keep up her act after I think it was the 3rd day, cracked, and went full on nut-O on the staff. I remember my mom and her sisters (5 daughters) all crying on the phone in relief (and shame) on the 4th day when the doctors called them and said that her mom wasn't going to be able to go home until a "full evaluation" could be performed. THEN we finally got the help we had been asking for all that time. The youngest sister had been the primary caregiver as Grandma had years prior moved into a house next door to her. I really can only imagine the relief she and her family must have felt - never mind the rest of us!
In hindsight, I wish we had stopped covering up for her so much. It would have accelerated the process to get (us) help if we hadn't been taking so much care of Grandma. If we had let her call the cops, if we had let her get caught wandering outside in her underwear, if we hadn't made excuses for her behavior or language in public and at the doctors....those were all 'enabling' moments that drew out our own suffering. Back when this was our issue, cell phone cameras didn't exist; my god I wish they had!! Record some of this stuff and contact your local senior support services, the elder abuse agency, etc, and request help. The cops can't really do anything, good or bad, other than file reports and contact the proper agencies (a GOOD thing!) to look into the issues. Your sister probably needs more help than even you realize yet. It's not time to be nice about it or polite; just "rip off the Band-Aid". We wish we had.
DO NOT BE ASHAMED of the situation. It's not your fault and you didn't ask for it. Its not fair, but sadly there is nothing that can be done about that. But you CAN make sure that it doesn't destroy your lives, so don't let it. I'm dealing with something similar atm myself and I have to constantly tell my fiancé (it's her mom) that her mom's bad choices in life cant be the grounds for us giving up ours and now paying for her mistakes. A line has to be drawn somewhere. And don't get me wrong, it sucks for me too. This has sidelined all the things she and I had planned and hoped for ourselves and I can say I feel your pain and your siblings pain in this. But don't forget that YOU COME FIRST. You HAVE to, else what's the point?