Alzheimer's Disease Support Group
Alzheimer's disease (AD) is the most common cause of dementia and characterized by progressive cognitive deterioration with declining activities of daily living and neuropsychiatric symptoms or behavioral changes. An early symptom is memory loss (amnesia), usually manifesting as minor forgetfulness that becomes pronounced with illness progression, with relative...
Hi folks, some of you might remember me BARRY who lives in Indonesia, sorry Ive been absent for a long time many due to some very serious computer problems that ended up with me having to buy a new computer and I must also admit to some utter lethargy on my part! So now I will try to correct myself with this post
How Sundowning affects me
Some time ago on Talking Point I was asked the following question and I quote:
(Barry could you explain how you feel whilst Sundowning, does anything trigger it or does it just happen like clockwork?)
Well as there are now so many New Members I thought it might be a good idea to post the thread again for easier reading rather than searching as sometimes new comers want answers immediately
The easy answer would have been to just to say yes (It happens like clockwork) but I think the subject is far more complex than that as it seems that Sundowning as its called can affect people with our illness at different times of the day, in fact a similar thing can also happen at the beginning of the day when the sun is rising, although the latter part of the day when the sun is setting seems to be the most significant time...
One thing I should explain is that here in Indonesia and some other parts of Asia Sun Rise and Sunset occurs at about the same time everyday of the year, by 6am its broad daylight and by 6pm its getting dark unlike European countries when during the summer you have extended hours of sunlight from 4am-9pm which in itself could have some significance as to when a person starts to feel the effects of Sundowning?
But how does it make me feel: I think the best way I could describe it is to say that it causes a similar feeling that I can still remember after having had a nervous breakdown some years ago that at the time resulted in extremely deep depression.
For me it normally starts at around 3-4pm when I start to feel very lethargic and just seem to be wandering around the house utterly lost in my own world mumbling to myself or sitting in a chair drifting into daydreams (in fact my dear wife Sumi says she can now tell what time of day it is without looking at the clock) I fell as though the end of day is trying to drain every last bit of energy out of my body, all my limbs become extremely weak and I find it very difficult even to go for our walk but still go in a effort to ward off the Sundowning effect, I can become incredibly short tempered and loose all sense of rationality and sometimes become verbally aggressive and argumentative, you feel as though the whole world is against you and that whatever you say or do is wrong so I dont like to be posed any questions at this time of day not even (what do you want for dinner) and I certainly dont like to have any visitors at this time not unless they want their heads bitten off as my mind is at a total loss of any comprehension, all I want is to have my dear wife by my side but she now realizes that its best to talk to me very soothingly and Im sure that she now just agrees with everything I say in an effort to keep me calm and also makes sure the house is kept peaceful without any excessive noise to further confuse my mind (Bless her as she has so much patients with me) as I start to feel as though I have the whole weight of the worlds problems upon my shoulders and everything becomes a effort so much so that my wife now has to help me bathe and get dressed as Im so agitated and shaky...
So there is nothing that actually triggers the Sundowning apart from the setting of the sun as it descends towards the horizon which makes it feel as though its automatically starting by itself, but if its not handled with sensitivity then there could be untoward repercussions, also I should add that not everyday is the same as some can be worse than others and sometimes I can go for a few days without feeling any effects of Sundowning and the other strange thing is that even the weather conditions at the end of day can have some influence if its overcast I feel much better and responsive but if its a strong bright crimson sunset that we get out here then the draining affect starts much quicker, in fact, I get much the same affect when I go into a shop that has to brighter a neon, or flashing lighting...
Now read of the reality when Im Sundowning
This is written on actuality not supposition from when my dear wife Sumi and I went for our end of day walk its not just a one off situation or sensation for me its more of an occurrence day after day that totally shatters me!
It was just 4-30pm as the sun starts descending over the horizon when lethargy takes a grasp of me and the Sundowning affect tolls the knell of my end of day so Im writing this down trying to express the depths of my true inner feelings at that exact moment in time...
My whole body aches as the muscles try to maintain some equilibrium, and as we go for our walk every faltering step I take being like that of wearing shoes made from concrete thats slowly setting and intensifying in weight, which makes me weigh heavily on my walking stick and Sumis arm otherwise I feel I could just pass out from utter exhaustion as my mind is consumed in a dense obscure cloud of disorientation and bewilderment, my limbs are trembling so much I dont know what to do with them to ease the tremor my vision has become blurred as my eyes feel heavy wanting to sleep and escape from the suns setting draining sensation, so Sumi tries talking to me to take my mind of the horizon as my eyes have become mesmerized following the suns descent and harsh rays but I cant comprehend what shes saying, I try to reply but any form of words and speech are held tight within me so all I do is mumble something incoherent which then makes me frustrated and I become really irritated and tetchy with her, the slightest little noise is more like thunderbolts slamming into my ears and making me very anxious and extremely jumpy...
The further the sun sinks away the further I go into despair of doom and gloom and sometimes it gets me to the point of saying to Sumi: (Ive had enough of this, maybe it would be better if it all ended now, and I did not wake up again) as I can almost sense death waiting round the corner taunting me when in this daily living hell of Sundowning, I can see the tears glistening and running down her cheeks as she holds on more tightly to me saying please dont speak like that but I seem to be oblivious to her own anguish as my whole being is so distraught by the time of day that I just want it to come to an end...
As I said those where my exact feelings made from notes one evening, but as I type them out the next morning I had little recollection of that moment in time its as if it never existed as this morning I feel a completely different person still full of determination and the spirit of fighting this terrible illness, but when Sundowning strikes it takes us into a completely different world of anxiety within dementia...
I will be very interested to know what others peoples observations are with Sundowning as its another part of the illness that doesnt affect us all in the same way.
Please feel free to copy this to your friends or on your own Blog sites as it might help other people to better understand how Sundowning can affect a person who has any type of dementia...
Barry
How Sundowning affects me
Some time ago on Talking Point I was asked the following question and I quote:
(Barry could you explain how you feel whilst Sundowning, does anything trigger it or does it just happen like clockwork?)
Well as there are now so many New Members I thought it might be a good idea to post the thread again for easier reading rather than searching as sometimes new comers want answers immediately
The easy answer would have been to just to say yes (It happens like clockwork) but I think the subject is far more complex than that as it seems that Sundowning as its called can affect people with our illness at different times of the day, in fact a similar thing can also happen at the beginning of the day when the sun is rising, although the latter part of the day when the sun is setting seems to be the most significant time...
One thing I should explain is that here in Indonesia and some other parts of Asia Sun Rise and Sunset occurs at about the same time everyday of the year, by 6am its broad daylight and by 6pm its getting dark unlike European countries when during the summer you have extended hours of sunlight from 4am-9pm which in itself could have some significance as to when a person starts to feel the effects of Sundowning?
But how does it make me feel: I think the best way I could describe it is to say that it causes a similar feeling that I can still remember after having had a nervous breakdown some years ago that at the time resulted in extremely deep depression.
For me it normally starts at around 3-4pm when I start to feel very lethargic and just seem to be wandering around the house utterly lost in my own world mumbling to myself or sitting in a chair drifting into daydreams (in fact my dear wife Sumi says she can now tell what time of day it is without looking at the clock) I fell as though the end of day is trying to drain every last bit of energy out of my body, all my limbs become extremely weak and I find it very difficult even to go for our walk but still go in a effort to ward off the Sundowning effect, I can become incredibly short tempered and loose all sense of rationality and sometimes become verbally aggressive and argumentative, you feel as though the whole world is against you and that whatever you say or do is wrong so I dont like to be posed any questions at this time of day not even (what do you want for dinner) and I certainly dont like to have any visitors at this time not unless they want their heads bitten off as my mind is at a total loss of any comprehension, all I want is to have my dear wife by my side but she now realizes that its best to talk to me very soothingly and Im sure that she now just agrees with everything I say in an effort to keep me calm and also makes sure the house is kept peaceful without any excessive noise to further confuse my mind (Bless her as she has so much patients with me) as I start to feel as though I have the whole weight of the worlds problems upon my shoulders and everything becomes a effort so much so that my wife now has to help me bathe and get dressed as Im so agitated and shaky...
So there is nothing that actually triggers the Sundowning apart from the setting of the sun as it descends towards the horizon which makes it feel as though its automatically starting by itself, but if its not handled with sensitivity then there could be untoward repercussions, also I should add that not everyday is the same as some can be worse than others and sometimes I can go for a few days without feeling any effects of Sundowning and the other strange thing is that even the weather conditions at the end of day can have some influence if its overcast I feel much better and responsive but if its a strong bright crimson sunset that we get out here then the draining affect starts much quicker, in fact, I get much the same affect when I go into a shop that has to brighter a neon, or flashing lighting...
Now read of the reality when Im Sundowning
This is written on actuality not supposition from when my dear wife Sumi and I went for our end of day walk its not just a one off situation or sensation for me its more of an occurrence day after day that totally shatters me!
It was just 4-30pm as the sun starts descending over the horizon when lethargy takes a grasp of me and the Sundowning affect tolls the knell of my end of day so Im writing this down trying to express the depths of my true inner feelings at that exact moment in time...
My whole body aches as the muscles try to maintain some equilibrium, and as we go for our walk every faltering step I take being like that of wearing shoes made from concrete thats slowly setting and intensifying in weight, which makes me weigh heavily on my walking stick and Sumis arm otherwise I feel I could just pass out from utter exhaustion as my mind is consumed in a dense obscure cloud of disorientation and bewilderment, my limbs are trembling so much I dont know what to do with them to ease the tremor my vision has become blurred as my eyes feel heavy wanting to sleep and escape from the suns setting draining sensation, so Sumi tries talking to me to take my mind of the horizon as my eyes have become mesmerized following the suns descent and harsh rays but I cant comprehend what shes saying, I try to reply but any form of words and speech are held tight within me so all I do is mumble something incoherent which then makes me frustrated and I become really irritated and tetchy with her, the slightest little noise is more like thunderbolts slamming into my ears and making me very anxious and extremely jumpy...
The further the sun sinks away the further I go into despair of doom and gloom and sometimes it gets me to the point of saying to Sumi: (Ive had enough of this, maybe it would be better if it all ended now, and I did not wake up again) as I can almost sense death waiting round the corner taunting me when in this daily living hell of Sundowning, I can see the tears glistening and running down her cheeks as she holds on more tightly to me saying please dont speak like that but I seem to be oblivious to her own anguish as my whole being is so distraught by the time of day that I just want it to come to an end...
As I said those where my exact feelings made from notes one evening, but as I type them out the next morning I had little recollection of that moment in time its as if it never existed as this morning I feel a completely different person still full of determination and the spirit of fighting this terrible illness, but when Sundowning strikes it takes us into a completely different world of anxiety within dementia...
I will be very interested to know what others peoples observations are with Sundowning as its another part of the illness that doesnt affect us all in the same way.
Please feel free to copy this to your friends or on your own Blog sites as it might help other people to better understand how Sundowning can affect a person who has any type of dementia...
Barry
I can see things from my mother in what you write. It explains the aggitation and upset that comes in the afternoon. It also explains why she can go to sleep at 6 pm and stay in bed until 8 am the next day. My guess is that when she gets that tired feeling she goes to bed even if she doesnt sleep.
Thank you for sharing.
I'm pleased this helped you
Best wishes
Barry
I've found your articles/posts out here extremely interesting; all are articulate, syntactic maturity is relativey high and long and short term memory skills are fully intact. Normally, episodic memory and semantic abilities deteriorate early in Alzheimer's disease.
Congratulations to you and I know I look forward to your future posts.
PD