I answered in your first post. Sorry your so miserable.

Same thing happened to me, tried to cut back cause retaining fluid but could not tolerate it, nausea, diarrhea, seeing black spots, weak, fatigue and brain fog worse, heart pounding at times, craving salt, chest pain from fluid volume low, lower bp, I'm sure that's the problem it just seems like we wouldn't retain fluid if we need the med? I don't know I can't figure it out, hope ur feeling better

You poor thing. I beg you to try this! A long time ago a Hololistic doctor introduced me to Slippery Elm to relieve and heal my stomach. Slippery Elm finding me has truly been an Angel gift. It's your turn. Go to a health food market or store that offers lots of supplements and get capsulated Slippery elm. Here's how I take it for heart burn. Goes away immediately! Fill a shot glass half full of water. Open caps and sprinkle 2 capsules slippery elm powder in the shot glass and stir to dissolve and drink it. You can add more water OR wait for it to gel. Put in frig. It healed a gastritis in my stomach. I give it to my cat to keep her from throwing up. Slippery Elm is good for the entire digestive system and intestines. If I have a problem is in the esophagus or stomach I use the loose powder. If my problem is in intestinal track, I take 2 capsules with 8oz water. The Elm powder has to make contact to work.

I will try that. I am very much into natural things. I used it years ago in a cough drop but thought it was so gross but will try getting capsules of the slippery elm.

I have tried homeopathic things for the swelling and nothing is working. Does anyone know how to balance getting enough HC and not swelling, or is there something natural I can take for the swelling that I have overlooked? Also, does HC cause any of you to have a really overactive bladder where you just get running to the bathroom to urinate all day and all night long?

I go to the bathroom often, il have to try that for my stomach having chronic gastritis, thanks

Darla, I have gastritis too. The doctors say it's from my prescription meds, especially the steroids and pain MEDS which are really hard on the stomach (18+ years now). Have they ever said why you got gastritis? I hope you don't mind my asking. I've had the gastritis now about 18 months. It's mild now, but still a problem. I've lost 40lbs in the last year and really don't want to eat any longer.

It's also a symptom of Bartonella which I have, I'm on a lot of meds, antibiotics and drs did say Cortef could cause it so thanks for responding, cause I was fixing to ask if anyone else had trouble. When I started getting it, it would come and go and protonix would help but now it's really bad, my stomach stays so inflamed with nausea and not eating much like u said. Dr gave me aciphex which I took awhile and it helped a little but I read it cause osteoporosis, and I have osteopenia already and then Cortef can cause it too so I stopped taking it, have u found anything helpful, sorry u have to fight that too on top of everything else u have

I was so excited to share what a great solution slippery elm is for this, I forgot to share there's a fair amount of information on the Web about nausea being a common problem with AD, the steroid meds to blame. After seeing my doctor(s) I get busy surfing google to see what else there is to know. Oh duh! (picture me slapping my forhead) ... as I'm writing this I just realized I didn't check the side effects on the medication I'm taking. BOINK!

My GI doc dx'd me last January with both ulcers and gastritis. I had lost 30 pounds and was having stomach problems. We've done 3 endoscopes. The ulcers are healed and the gastritis is just mild. She told me it's from my steroids and long term pain MEDS. I was on Nexium, prescription strength, twice a day. But she didn't see enough healing during my March endoscope and added Zantac twice a day. I'm still on a pretty bland diet but can add a few things here and there. I knew things had healed when the Zantac gave me heartburn about 30 minutes after taking it. I had too much acid suppression. Stopped the Zantac and I hope to get off the Nexium in September. The gastritis board will give you the diet.

I still have nausea, everyday. My migraines and nausea go away by my 3 rd dose of HC. Then I do it all again tomorrow, lol. Although it isn't a fun way to start your day. But I just remind myself that I'm lucky to have the meds and doctors so I don't feel bad all day, and comfortable bed, my iPad, etc. I would hate to have a serious condition in a third world country. It's already hard enough.

Nausea was perhaps my BIGGEST symptoms prior to being diagnosed and prior to HC and therefore I don't think it is the HC doing it. But Lynn you poor darling, migraines everyday? Why can't you do somehting like I do which is I take my first dose at 5 am. My second is by 10. Wouldn't it be behoove you to start earlier and get that darn medicaiton in you so that you don't spend the majority fo your day miiserable? That's just horrible. I feel so badly for you.
There HAS to be a better way of dosing that will allow you to feel better.
Also, Lynn, please read up on Circadian Rhythm and Addison's Disease. (google it all together) I think you need to try getting bright light in the morning, either by sunlight (cheapest) or light box. If you are like me and are dragging in the morning and by night time you feel so much better, your circadian rhythm is flipped. If you can straighten that out, not only witll your AD do much better , but I think those horrible a.m. symptoms may improve. That is what I am currently working on -- getting my circadian rhytm straightened out. We have had so much rain that ti's been hard to get into the sunshine in the am. but I am determined to fix this problem.

I have daily headaches too, I have so much going on wasn't sure the exact cause, I know some of it for me is female horm issues, possibly Lyme but adrenals too? Is it low cortisol? I can't tell u the last time my head r body didn't hurt. Lynn, so sorry ur suffering with that, u have a great attitude though, ur inspiring , thanks Jazz so u think dividing doses more often would help? I didn't know u could change ur circadian rhythm - interesting

I usually wake up between 4-5 am. I take 5mg and hope to go back to sleep for a little bit to let my pain meds work. It's about 50/50 success rate. If I take too much HC too early I'm in bed by 7 pm. As it is I'm almost always asleep by 9 pm.

I've had migraines since I was about 21, but only maybe 1 a week. Leading up to my dxd I started having multiple migraines. Once I had Addison the headaches were 24/7. Lack of cortisol and not being dxd with celiac for another 10 years. Still have them daily, but they aren't nearly as bad as they were.

Thanks for thinking of me.

Yes it has done and I think you are right, going too low or weaning too fast has done it for me. Apart from anti nausea medication, I find something salty like a cracker or chips helps the feeling ease up a bit. Gets better once my morning dose kicks in. Hope it eases up for you.

I would say if you are weaning to a lesser dose, you are either weaning too fast or have gone too low. It is best to find a dose where you are not feeling any low cortisol symptoms, and if you feel good on a dose that suits you, best to stay there. I am weaning down from high doses due to getting other sickness since my crisis and diagnosis. They say that if you are cushy you are on too much, but if you find a dose that does not make you cushy, then that is probably the right dose for you. It is not good experiencing low cortisol symptoms, it means you are too low or weaning too fast. Do you have any anti-nausea medication to help you feel better?

Sorry it took me so long to reply. I didn't see there was a second page of replies! lol

Yes, I think you are right. I have to find a dosage that is just perfect for me. But I do find that changing my dose to 5 am and again at 10 am works well for me.

Yes, Darla, you can change your circadian rhythm which is often 'off' or backwards with AD people. Google "Addison's Disease and Circadian Rhytm" and also "Adrenal fatigue and circadian rhythm". Because I had a lot of eye surgery, I wore sunglasses continuously for several years. My poor eyes never saw sunshine. This flipped my circadian rhythm so that my body wanted to sleep in the am and party all night. It is so important also for depression among other things to get out daily in sunight without any glsses or contacts on our eyes and let the sunshine strike our pineal gland. You can gogole that too. It sure has helped me. No more sunglasses for me!lol