Addison's Disease Support Group
Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone
Hi Guys!
I was reading an older post from 2009, and someone brought up the suggestion that many of us are taking more steroid than the clinical dose, and could be experiencing some Cushings symptoms.
I often wonder that about myself. Besides the heat intolerance and weakness, I often get such a huge ball of stress inside me, that I feel I'll burst! I get angry...I threatened a seagull the other day, hehe....not me! It feels like there is an over-abundance of bad energy that has no where to go...and it doesn't feel real great for my heart, that's for sure. When it's extreme, I feel like a broiling ball of insanity, and I feel it physically! It can be agonizing!
My 24 hr. urine test revealed that I'm normal, but on the high side of normal. That was before all the summer heat, so I'm assuming that I am using more cortisol, these days.
Anyone have any thoughts or experiences on this?
When will we have a test kit, for everyday use???
I was reading an older post from 2009, and someone brought up the suggestion that many of us are taking more steroid than the clinical dose, and could be experiencing some Cushings symptoms.
I often wonder that about myself. Besides the heat intolerance and weakness, I often get such a huge ball of stress inside me, that I feel I'll burst! I get angry...I threatened a seagull the other day, hehe....not me! It feels like there is an over-abundance of bad energy that has no where to go...and it doesn't feel real great for my heart, that's for sure. When it's extreme, I feel like a broiling ball of insanity, and I feel it physically! It can be agonizing!
My 24 hr. urine test revealed that I'm normal, but on the high side of normal. That was before all the summer heat, so I'm assuming that I am using more cortisol, these days.
Anyone have any thoughts or experiences on this?
When will we have a test kit, for everyday use???
I know, you're right about the testing. I just wonder if somewhere down the road, something might be invented to help us stay a bit more on an even keel. I'm no doubt dreaming.
I used to be so very patient, though! I'm only glad I raised my daughter before I started taking the steroids...I shudder to think of the mom I'd be, now! Sigh...
i'm hoping to start having kids soon!
i know exactly what you guys are talking about.
my new endo told me that i might actually have
BOTH ... since i'm secondary addison's, i guess
maybe i could have secondary addy's from prime
cushings? he had lots of lab work done, and i'm
STILL waiting to find out - a good two months
later. though in the meantime he's doubled my
cortef, so i'm thinking it's a no ..? and yet, i look
like an oompa loompa. ah, the irony.
do you know the symptoms of cushings?
why won't it all just GO AWAY!?!?!?!
I'm a big help, I didn't mean to scare you for having children! As we're often saying, every case is different, as we all have our unique systems, and degrees of health issues. One thing that I KNOW contributes to my anxiety and impatience, is that I am the sole caregiver for my elderly dad...a very deaf dad! He's wonderful most of the time, but there is that added stress of not living the my life how I want to. And I'm sure the steroids contribute to some of my stress, but probably not all.
I found a few of the Cushings symptoms, and I sure have some...the chunk in the middle (ack!) and the thin skin and anxiety. It's so hard, isn't it? You don't know which side your bouncing into, when you just want to be in the middle!!! =/
(Oompa Loompa, huh?) ;]
Cushings symptoms, partial list:
Weight gain, particularly around your midsection and upper back
Fatigue
Muscle weakness
Rounding of your face (moon face)
Facial flushing
Fatty pad or hump between your shoulders (buffalo hump)
Pink or purple stretch marks (striae) on the skin of your abdomen, thighs, breasts and arms
Thin and fragile skin that bruises easily
Slow healing of cuts, insect bites and infections
Depression, anxiety and irritability
Loss of emotional control
.....etc.!