Addison's Disease Support Group

Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone

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Endocrine System
/ Addison's Disease Support Group

So very weak

JudithPoodith
JudithPoodith
Hi,
I can't write much now, as I'm having an attack right now. I've had adds for over 10 years, I'm in my 60's, and recently have been through months of terrific stress. Been taking extra HC but doesn't help. After cooking dinner, I feel like I'm dying! I had my cort. levels checked, but that was a month or so ago, haven't heard from endo. I did call, but no call back.
My sodium is always good. Wondering if I'm coming to the end of this disease, that's how weak I feel.
Any thoughts?
Judith in CT
JudithPoodith
JudithPoodith
Heart rate 95 after sitting for a while....never felt like this before, and I'm due for minor surgery next week! Can't see how I'll handle the anesthesia, even with the extra steroid. BTW, my heart is often fast.
JudithPoodith
JudithPoodith
Also, I see that, after all these years of treating the Adds, my knuckles have darkened again, like they were before I began meds! Wondering if this means I'll never be able to get back to how I was, several months ago. Does anyone know? The HC has given me an eroded esophagus and put on weight, and I hate to think I'll always have to take more of it!
JudithPoodith
JudithPoodith
HA, I came on here to ask why I get so very weak eating dinner, so weak that I must lie down, and I see that I've already asked that. No replies, oh well....my doctors are useless, guess I'll just have to continue suffering.
JudithPoodith
JudithPoodith
Hi Jen,
Thanks for replying. You know, I don't like this new site, either! Sure, I would like the link. I am on a few Addison's fb pages, so don't know if it will be one that I'm already on, but I'd like to see it. I hope you're feeling better now, too!
skystar92
skystar92
hello, i have had addisons for 13 years, and i fear though i am 24 i feel like its getting the best of me as well, i never seem to feel like i used to and fear i well never be there again,my meds don't seem to want to work any more, and i am taking as much as my doctor well let me have,i cant maintain a weight, cant eat anything any more, but mostly bread, pasta and soup, and i have to take anti nausea pills to keep from getting sick and be able to leave my house with out the fear of getting sick while i am out,i feel for you its hard for me to do normal every day things, cant work either, so i understand the fear and worry about coming to the end of it, but i wish you luck and know your not alone.