Addison's Disease Support Group
Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone
We are trying to get this going on facebook, and only 300+ have signed...we need to get this circulating! My friends are signing, but not sharing....please sign and share, wherever you think it might help, for our own week of awareness! =))
https://petitions.whitehouse.gov/petition/create-national-addisons-disease-awareness-week/7xb7LvkV
https://petitions.whitehouse.gov/petition/create-national-addisons-disease-awareness-week/7xb7LvkV
Nikki-Bullock
I'm so glad to see you have posted this as well...we are at 352! :)
JudithPoodith
Nikki, that sounds good, but I think we need an extra month! Everyonbe keep sharing...on facebook, here, to your friends and family!! xo
webber
I'm getting as many people as possible to sign! I have reposted 3 times to my Facebook account to keep reminding people to sign and spread the word.
Nikki-Bullock
I think so too .... I am unsure why Jan. 13th, as I said I was asked to help get the word out...a wonderful lady in the addison's disease support group and FB ... now I think I will ask her why the time limit...im curious too now .. Thanks for sharing guys :)
JudithPoodith
Thank you, everyone, for helping! Nikki, I know...we rare disease folks need extra time!! :)
22Lynn
Judith, I signed the petition and posted it on FB. I wish we had more time. I can't imagine us getting that many signatures in time. We need a miracle. There were 454 signatures when I signed just now. I'll re-post on FB everyday until our time runs out.
JudithPoodith
Thanks Lynn! Yes, we do need a miracle, but I'm thinking, even if we don't get our 'week' this time around, at least we will have raised more awareness for the disease.
22Lynn
I'm so glad to see my friends and family post and re-post the petition on FB. This has been a good tool for people to find out about AD. They have been looking it up online and understand more of what I'm going through. So I know we won't get enough signatures but we are still educating people out there. And that's a good thing.
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