Addison's Disease Support Group

Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone

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Darla40 06/01/2011

I was just wondering if any of you guys have mucle weakness my legs and arms are weak on and off more on lately. i think its from Lymes(for me) but just checking with any of you that have been on the steroids for a while. Of course I was told by a dr probably from the steroids. They seem to blame everything on that. I have one Dr tell me shouldnt have side effects if just replacing hormone not being produced and others saying something different I dont think they really know. Anyway please let me know what you think. Thanks . God Bless Darla

deleted_user 06/01/2011

Hi Darla,
I have the same experience. Every single muscle had atrophied, before I achieved 'homeostais' (thinking positively)! Although I've been dedicated to my exercise routine, my arms & upper body in general, remain weak. At times I question whether the atrophy will ever resolve, but I keep trying.

I do not believe steroids are the culprit, rather proteins/enzymes and interference in the absorption process, are involved.

Darla40 06/01/2011

Thanks I have had a little trouble but lately its been worse well hopefully it will get better soon. Thanks for input I appreciate it.

Darla40 06/01/2011

i hope yours gets better too. Darla

webber 06/02/2011

Hi Darla,

I definitely had that problem before going on steroids but since the steroid treatments for my Addison's the weakness and pain has gone away. Along with taking the steroids I did increase my intake of Vitamin D and I also increased my workouts which has really helped.

Keep working toward health!

Darla40 06/02/2011

Hi thanks yes I reeber having it before I got on steroids and it did get better thats why I think its more Lyme related just checking with others to see if its a ad problem. Thanks i cant wait to get well wow is it time. darla

deleted_user 06/03/2011

I am very active, even with Addisons. I noticed that my leg and arm muscles were getting weaker and less defined rather than more so given the amount of strength training I did. I convinced my endo to test my testosterone levels. They were barely there. I am on a testosterone cream now and feel so much better. I am able to see muscle definition and my legs are so much stronger.

Darla40 06/04/2011

Thanks

Darla40 06/04/2011

Thanks sounds like you al improved with testosterone Im on testosterone, dhea progesterone and still having lots of trouble so I think its from lymes thats why I wanted to check with all of you to see If it affected you thanks for the input I appreciate it very much. I also have lots of pain muscles joints neuropathy in legs and feet with the weakness(not fun. So I know something else is going on.

Darla40 06/04/2011

What kind of patch is that never heard of it. Sounds like it is helping you. Darla

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