Addison's Disease Support Group
Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone
Vanyel
if you're on a substantial subscription of steroids, you should find that when you come down with something that would normally raise someone's temp, it doesn't raise yours - or, if it does, it does so very slightly.
this is our new 'norm' - just another way that the good old addison's likes to play w/our heads.
if you find that you *do* have a substantial temp while you're on your normal steroid dose, i would get ahold of your doctor, as it's definitely a sign that something's not right.
this has been a problem for me since i was diagnosed; i am *constantly* burning up, hot as hell, red-faced - but NO temp. it made no sense to me, until i recently went into a crisis while @ my doctor's office, and was SO hot that i actually DID spike a fever, which immediately worried her, since i'm on steroids (so i shouldn't have high fevers), and i never have high fevers in the first place.
i know that going on prednisone in the beginning can raise your body temp, but this seems to happen after your body gets used to being on steroids, i think.
that's my story - hope it helps!
xo, misa
while i mean no disrespect, i thought i might address this:
i feel that sometimes in your posts when you correct people, whether you know it or not, it comes across harshly, and maybe even as though you believe that the previous poster is wrong, or does not know what they are talking about.
you also seem to make a few blanket statements that no one could possibly know to be true ('...and is all most doctors check as a screening for thyroid problems. If it is 'normal' they look no further, which is a mistake.').
while i realize that you worked in medicine, and have done a lot of research on top of that - but so have many others, and while i'm sure it's not your intention, it can come across as undermining to read that someone else's information is simply wrong. maybe there's a better way to word it? also, w/the quote above: there's no way to truly know if 'most' doctors take shortcuts while screening for thyroid problems ... i mention this because i feel that statements like this might cause unnecessary distrust or resentment towards endocrinologists, and we don't want to assume the worst about them; there are many thorough, caring, endos out there (but of course, you're right, there are some who cut corners as well!).
i really don't mean to come across as harsh or attacking; you are invaluable to the board and - whether you know it or not - have given me a *lot* of helpful information! there are just a few things i thought about after reading your post, that might help you reach more people. me and my big mouth are always saying what we think - hopefully you'll do the same w/me!
xo, missy
my temp has always been low but never as low as since i went on cortef.
on the one hand, i'm so grateful to have finally been given a diagnosis for this mess, and know that there is something that will not only help - but keep me alive.
on the other hand ... could there BE another crappy side effect from cortef? maybe, but i'm thinking more along the lines of maybe not! it's *so* frustrating, isn't it?
but again, i'm alive to write you this message, and you're alive to read it - and we have to be thankful for that.
hope you're feeling well!
xo, misa
L-Carnitine - Linus Pauling Institute at Oregon State University
http://lpi.oregonstate.edu/infocenter/othernuts/carnitine/ - 69k - Similar Pages L-carnitine is a derivative of the amino acid, lysine. Its name is derived from the fact that it was first isolated from meat (carnus) in 1905. ...