Addison's Disease Support Group
Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone
Good luck!
- Kristen
It takes some time I think to manage the anxiety, but with a little practice I have learned to lead a completely normal life.
good luck!
I hope this is the case for you!
Anxiety & depression go hand-in-hand. It's rare one will have one w/o the other. I can only imagine, learning you have Addison's, must compound everything.
Just some tid-bits: When you intially begin steroids, your body may react unfavorably, although you are actually replacing what your body was lacking. Since you've had abnormal levels of cortisol for yrs., introducing steroids to an 'unfamiliar' territory, everything seems foreign and reactions become very different. Initially, the body may become hypervigilant and appear to exacerbate pre-existing conditions. It does take a while (~6 mos), for the body to adjust. I know it may seem like a long time, but this will pass, it will.
Many take anti-anxiety meds, for several reasons. If you continue to feel unsettled, maybe your MD could prescibe something to help you get over this initial hurdle. Try to breathe & empty your mind, when all seems overwhelming. Staying busy is a great distraction.
Most importantly, this is a wonderful place to vent, learn, share & teach. So please stay in touch? Beginnings are always the most difficult, always. But, beginnings do fade away & become old.
I suffered from depression and anxiety until I was diagnosed. I still take anti depressants and most of the time I'm okay. I did find the same sort thing as Amelia it is not often the reality. Well said. Now I too live a pretty normal life. This site is new for me too and I already feel like I'm not alone anymore. Good luck.
I definitely feel so much better since joining this group; I don't know anyone personally that has Addison's and it really makes it so much easier to transition into 'life with Addison's' having y'all here to be able to ask questions and learn more about this. Without, I think I'd feel like I was trying to feel my way through a dark room. My family and friends have been really supportive but I don't think many of them really understand Addison's.
And also, thanks lunarphase, it's good to know about the steroids and how they work with the body. I have been really nervous about the prednisone. I know it's a really tough drug to go off and I know it's hard on the body.
Thanks again for all your responses! It really makes me feel better knowing my anxiety could just be amplified by the Addison's.
Stephanie