I will start, i am a daughter / some time carer for my mother (66years)

From Perth, Western Australia, treated at St Charles Gardiner, BMT via Royal Perth.

Mum diagnosed in April 2013, 1st round in remission, 2 further rounds. Breast Cancer in Dec 2013 (mastectomy on advise from BMT doctor) BMT in March 2014.

Currently just back home (Aug 2014) with Flurobine Toxicity after 7 weeks rehab.
Health great :)

Yes -- this will be a great thread for introductions -- let's keep them brief -- there are a lot of us and quite a few new people too. I am daveB (there is another Dave J -- GREAT guy) -- going on five years survival so one of the old timers, but young age -- only 70. Chemo only. If you are new, take heart -- this is a great adventure -- you might as well enjoy as much of it as you can. And God bless -- dave

Great idea Aussiemum! I have been on contact with several new members via personal message so I'm hoping they'll introduce themselves-You know who you are :-)

I am a 49 year old wife and mother of three amazing daughters; ages 9, 11 and 13. I was DXd on March 22, 2013 with Inversion 16 AML with a negative C-KIT and FLT3. I reached remission with one round of Induction and had four subsequent rounds of consolidation. I was deemed in completed cytogenic remission (no genetic sign of Inversion 16) in Jan 2014-Praise God!

I am blessed to have the opportunity to help and be helped on this site.

Blessings,

Julie

I am the mother of a 33 year old son who was Dxd on 3/24/14 with AML (M1) resulting from MDS (they assume as they found both at the same time).

He obtained remission of the AML with one induction and has undergone 3 consolidation rounds while waiting for a SCT.

His donor has been found and the SCT has been scheduled for 8/28/14 pending an acceptable medical exam for his donor.

This site is wonderful and I find the advise given by those who have already experienced treatment and/or SCT helps me get through the day.

Karen

Great idea!

I'm 45, diagnosed in August 2011 with AML (normal karyotype; FLT3 negative, NPM1 mutated). Was chemo only.

Relapsed in early June 2014, after almost 3 years years (I was sure this was all behind me). Went through induction again, recently completed one round of consolidation. Having a transplant (BMT/SCT) from an unrelated donor in the next few weeks.

I live in Israel.

Abby

I am the only older sister to a 40 yo younger brother diagnosed with aml in 12/13 with FLT3 TKD. Our father passed away with stomach cancer when we were 13 and 9. (We grew up without a father as our mother remained a widow) My niece and nephew are 2&3 so my brother's diagnosis has been a nightmare. He had BMT with my marrow but relapsed early July. He is currently at UCLA fighting off gvhd. We are not sure what God has planned for us but believe that He is in control.

I am very very thankful and grateful for all the wonderful comments and support from everyone! All of you have been absolutely awesome.
CC (cecilia)

Hi,
I'm a 44 years old, married with 2 boys. I'm at MD Anderson, Dx in May 2014 with AML, M4, trisomy 4 mutation, FLT3 ITD negative with multiple mutations including NPM1, NRAS, and DNMT3A.

I went through 3 rounds of chemo and and waiting for a SCT that will likely happen mid Sept. I have a donor, a 20 yr old female.

I'm so happy to have found this group. Everyone is so supportive.

I'm 32. I was dx at 29 with AmL fab M2 (hospital still used the fab classification) normal cytogentics. 1-Nov-2011. I had FLAM induction (Hopkins headed clinical trial). 4 rounds of HiDac consolidation. I relapsed, we thought Dec-2012, recent review of bloodwork from a different doc Nov -2012. (Finished chemo in July -2012)

Relapsed salvage chemo was HAM. Followed by a round of consolidation while I transferred hospitals for transplant. I had a mini Haplo (half matched) transplant at Hopkins in April of 2013. Followed by some mild GVHD of the skin. A bout of ITP. Now dealing with what looks like a bad reaction to Dapsone and sirolimus combined with a viral infection.

Hi,

I thought that I had already posted on this thread. Shows you what chemo-brain will do for you!

I am a 61 year old physician who was diagnosed with AML on March 28, 2011, my parents' anniversary. I don't know my M type and never will ask for it. I was treated with the 7+3 induction regimen and did not achieve remission. What I did achieve was a fungal pneumonia and sepsis and a trip to the ICU of which I have no memory at all. On the second try, with high dose Ara-C, I got into remission, and did well with my consolidations. I was conditioned with chemotherapy, including ATG and radiation. I was transplanted on Sept 8, 2011 with a T-cell depleted transplant from a donor from Germany. I hit a few minor speed bumps in the recovery process, having trouble maintaining my ANC for a while. Ultimately, things stabilized. My health has been remarkably good. I have had no colds at all. I did get influenza A in January and had a bout of post-viral syndrome with lung issues that resolved, and about of horrendous L2 herpes zoster and am still getting over post-herpetic neuralgia (not fun). I say this, because, despite a few annoyances, I AM VERY HEALTHY. This is how we all need to look at things. As my mentor, a 15-year survivor told me, "Don't sweat the small stuff, because it is all small stuff." We have to always look at the big picture and be thankful that we are alive.

BTW, I have 3 children, a daughter 30, a daughter 28, and a son 25. They have all be there for me through all of this. I also have a wonderful wife and an incomparable sister, who came to see me in the hospital after work, virtually every day.

There is a lot of love on this website,

Cliff

I am Laaryssa. I just had my 72nd birthday in July and live in Utah--. had induction and 2 consolidations, each of which I faired well in, with only a few hiccups so to speak--currently, scheduled to have the bone marrow transplant on 05 September (not 07 Sept as I put on the site originally). I have been helped by many of the folks who write on the site and it truly helps me keep positive..

Laaryssa -- great to have you aboard -- I am 70 so we are some of the oldest here. I did not see your previous post -- it is hard for me to stay up with all of the threads. I hope more people will come to this one and introduce themselves, even if they have been on here for a while. This is a great way for us all to get to know each other better. Take care -- dave

My sister Jo is 52 and was diagnosed with AML, inversion 16, in January, 2014. She has been through induction and 3 rounds of chemo. She is in a trial at MD Anderson and has 3-4 treatments to go. She has been doing well medically, no infections or issues other than slow count recovery and a few mouth sores, but that is picking up also we believe. Her counts seem to be coming back a little faster. Emotionally, she has a hard time but I think most do when their lives are turned upside down.

This site is great for getting information. Even if you don't post, you learn a lot from reading others.

Debbie

Debbie

So glad to see your post as I have been wondering how Jo was doing.

Happy to hear that she is doing good.

Karen

Hi everyone, my husband (now 42 yrs old) dx AML (inversion 16) last year 02/2013, achieved complete molecular remission with induction and 4 rounds high dose Ara-C consolidation. Was in remission for 14 months before relapse confirmed April 10 2014. Reinduction (cr2 achieved May 2014, allogenic MUD (21 year old male) HSCT on July 10, 2014. We have been together for 14 years and have 1 beautiful child, Isabella, 2 years old, & the greatest gift from God imaginable

Also my dear dad (64 years old when dx) was dx w AML in sept 2011, achieved remission on induction and 3 rounds of consolidation, but tragically passed away from sepsis due to a nutropenic fever (bacteremia) during thurs consolidation round. I was 4 months pregnant, and my dad never got to meet his only grandchild, but I know he is alive in her- she has his amazing smile! I miss him terribly every day and replay those final confusing moments in my mind over and over, but knowing what we learned from his death has helped us be extremely pre

Oops...
Prepared for nutropenia during my husbands treatments.
Welcome everyone, you have found the most supportive group imaginable!
God bless us all on this journey
Lea