Acute Myelogenous Leukemia (AML) Support Group
Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.
Dear all,
Ok, now that it seems like transplant season here, I am added too. Starting chemo today and scheduled for transplant on September 4th.
After some ups and downs with potential donors, my donor is 9/10, 28 year old male.
I'll be getting 4 days of chemo (2 drugs, I need to look for their names...) and 3 days of ATG immunosuppressant (1 day overlapping). Did anyone have ATG? I hear it's no fun....
It's very scary, especially to be feeling well and healthy but knowing it's just an illusion and that the transplant is needed. And also knowing that how I currently feel will very soon be replaced by feeling quite bad. AND how unpredictable it all is (I know the future is unpredictable for everyone, it's just that we have this hyper-awareness to this fact).
Overall I am well, with good energy and able to do some work, which is the best distraction.
Wishing all of my fellow end-of-summer-early-spring transplant buddies lots of luck and health. It's great to have you all here as support.
Abby
Ok, now that it seems like transplant season here, I am added too. Starting chemo today and scheduled for transplant on September 4th.
After some ups and downs with potential donors, my donor is 9/10, 28 year old male.
I'll be getting 4 days of chemo (2 drugs, I need to look for their names...) and 3 days of ATG immunosuppressant (1 day overlapping). Did anyone have ATG? I hear it's no fun....
It's very scary, especially to be feeling well and healthy but knowing it's just an illusion and that the transplant is needed. And also knowing that how I currently feel will very soon be replaced by feeling quite bad. AND how unpredictable it all is (I know the future is unpredictable for everyone, it's just that we have this hyper-awareness to this fact).
Overall I am well, with good energy and able to do some work, which is the best distraction.
Wishing all of my fellow end-of-summer-early-spring transplant buddies lots of luck and health. It's great to have you all here as support.
Abby
chemo and ATG has had me feeling bleh, but I'm also excited (and fearful) about the path that is starting tomorrow.
Thank you so much for all your support!
Abby
I am praying fervently for a successful sct tomorrow and for a healthy recovery for you.
May God bless you abundantly
Julie
Julie
. .
You have nothing to worry about! From now on we can celebrate our birthdays together. Mine is next Monday!!! Three years young.
Cliff
Prayers and best wishes and Happy Birthday.
Twilight
You are in my prayers.
Karen
Lora
xoxo
Monique
Thinking of you and sending prayers.
Margaret
I've been quiet for a few days, not feeling great. Transplant day was good, as for most, it was uneventful and at the same time exciting.
Now it's day +6
I've been struggling with nausea - all and any tips will be appreciated. It's the number 1 thing that has been really bothering me.
The moments I suddenly have a break from nausea, feel great. Once it's back, I can't even carry a conversation, I don't want to see anyone, I just want it to go away...
I have C-Diff, so that's another inconvenience.
And total lack of appetite (which is a new feeling...)
Other than that, things are going as planned.
Will keep updating....
Abby
davej
Lora
It is so great to hear from you I have been thinking about you and praying that your cells start growing soon.
Jeremy had the same nausea and C-Diff, he drank the Ensure when he could and ate peanut butter and jelly sandwiches, for some reason he could stomach them. They also put a sea sick patch behind his ear and this helped a little.
He is still not eating much but now it's because of the mouth sores. Last night they brought him milk and a powder shake mix that he said tasted like a strawberry milk shake, so he enjoyed it.
As everyone tells me you will start to feel better once your cells start producing and you get some white cells to help heal the tissue linings that the chemo damaged, so relief is right around the corner.
You are in my prayers and thoughts.
Karen