Acute Myelogenous Leukemia (AML) Support Group
Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.
I know everyone says not to focus on one number, just the trends, so I waited a week to post this. Tonys platelets have dropped every lab since last Monday, they were 51, then 43 Wed, then 37 Friday, now 23. We are terrified as to why. We are day +25. His Heme is stable, but his whites dropped too (although they said 1 week after nupogen shots were stopped, this is expected to drop about 50% from discharge)
So many thoughts are running thru my mind.... Is his graft now failing or late graft failure, is this the aml disease recurrence, is this SFPR(secondary failure platelet recovery)? All of these are very very bad!
I actually think I am going to throw up or pass out from panic. Tony, who has always been a total rock thru this all, is shaken too. I'm not sure how to handle all this stress! It's been an unbelievably grueling and torturous 30 months, not sure how much more I can take.
So many thoughts are running thru my mind.... Is his graft now failing or late graft failure, is this the aml disease recurrence, is this SFPR(secondary failure platelet recovery)? All of these are very very bad!
I actually think I am going to throw up or pass out from panic. Tony, who has always been a total rock thru this all, is shaken too. I'm not sure how to handle all this stress! It's been an unbelievably grueling and torturous 30 months, not sure how much more I can take.
I am so so sorry you two have to endure this, I truly am. Knowing that you lost your beloved Father to AML as well must be so overwhelming. You and Tony are so amazingly strong and are such an inspiration. I inspect my daughters bruises as well and when they complain about going pains, which is often because they are all projected to be over six feet, my mind goes to the dark place. My heart aches for you and I am praying fervently for your family.
May Almighty God grant you rest and peace
Julie
Debbie
Twilight
My family is praying for each of you. That BMB WILL BE CLEAN!!!!!
Blessings,
Julie
Tomorrow's bone marrow is at 10 am, labs at 9, please god let his bmb be clean and labs look good. We will take all the love, prayers and support we can. We feel it will be clean and are really hoping for 100% donor cells as well!
Xo
Lea &Tony& Izzy
I will be praying for him. Best of luck for good results tomorrow. We are on the other side of BMT now. Julian has relapsed and we are waiting for our next step. :(
Jacki
Please keep us posted. Will be thinking about you and praying.
Twilight
Lora
You and Tony have been in my thoughts and prayers all day. How did the BMB and labs go? How long will you have to wait for results?
Julie
I completely understand all of your angst and stress, Lea. I will write more in Lori's thread "Living with Uncertainty", but I am still recovering. I find that I still cannot sleep at night unless I take something to help. I am taking 1mg lorazepam/Ativan at bedtime to calm my rattled nerves so that I can sleep.
xoxo
Monique
Just wanted you to know that I am thinking of you and your family. I hope everything is well with Tony and that his results come back perfect! Thank you so much for your kind words as well.
Jacki