Acute Myelogenous Leukemia (AML) Support Group
Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.
Cliff and I thought it would be good for everyone on the forum to enjoy and be inspired by all of the survivors' happy birthdays.
A "happy birthday" can be when you just got a good medical report, or it could just be any period of time you want to tell us about (e.g., Ben's 100 day birthday).
Please let's keep this thread positive -- if you are having trouble or issues, there are all of the rest of the threads for you, and we will surely help you. But we want this one to be one where those who have been just DXed can come and say: "Hey, all of these folks have made it and are celebrating -- I can make it too!!!
Please provide positive info from your recent exam if there was one. If not, just want to tell us about a time milestone.
Let me be the first to start. I got a great report yesterday. I had AML and still have MDS, but no matter -- I am three years and going on three months since my last treatment ... chemo only. I am now 69. Here are my important blood numbers: WBC: 4.8 (good); RBC: 3.64 (low); MCV:114 (high); MCH 39 (high); platelet: 110 (low). Might sound like bad numbers to you, but they have been consistently there for 3 and 3 now, so it just shows that survival does not depend on perfect numbers. My onc says as long as they don't change dramatically, that shows I don't have a blast problem (relapse). They don't want me back there for another six months. So wish me a happy birthday! -- dave
A "happy birthday" can be when you just got a good medical report, or it could just be any period of time you want to tell us about (e.g., Ben's 100 day birthday).
Please let's keep this thread positive -- if you are having trouble or issues, there are all of the rest of the threads for you, and we will surely help you. But we want this one to be one where those who have been just DXed can come and say: "Hey, all of these folks have made it and are celebrating -- I can make it too!!!
Please provide positive info from your recent exam if there was one. If not, just want to tell us about a time milestone.
Let me be the first to start. I got a great report yesterday. I had AML and still have MDS, but no matter -- I am three years and going on three months since my last treatment ... chemo only. I am now 69. Here are my important blood numbers: WBC: 4.8 (good); RBC: 3.64 (low); MCV:114 (high); MCH 39 (high); platelet: 110 (low). Might sound like bad numbers to you, but they have been consistently there for 3 and 3 now, so it just shows that survival does not depend on perfect numbers. My onc says as long as they don't change dramatically, that shows I don't have a blast problem (relapse). They don't want me back there for another six months. So wish me a happy birthday! -- dave
Happy birthday to me ! And thanks so much, dear Lord, for my new life.
Congrats on a huge milestone. So happy to hear good news on the forum. I hang on those words and long to be the one talking about 2 years ago, etc.... It will happen. I love this group. Every time I see to have a doubt,I read these posts and realize how I do not walk alone, but I walk with new brothers and sisters. Love you guys!
Peace,
Andrea
Congratulations on reaching 100 days, wow! Praying that it will be smooth sailing this week, thinking about you today as you go to your appt.
Shimauta~ congratulations on 1 1/2 yrs, it is nice to see time go buy.
Take Care,
Suzanne
You are the greatest! I am sending love your way. Celebrate!
CLiff
Thank God for the good news of lovely Andrea's , dear Phil's and Melinda's momma's 100 days.....wow that is a milestone!
I know we have more people following, We wait and pray for you all
Sandra
psalm 27:14
That's HUGE!!!! I am so happy for you and your Mum.
YAY!!
Cliff
I agree with you....PICC bad....HICKMAN good. I had no trouble with my Hickman and all I got was some xylocaine to put it in and nothing to take it out. It was stable, never pulled out, etc. Those PICC lines are either clotting or falling out.
In any event, Melinda's mum has NOTHING!!! As I have said before, when I go for a visit to Memorial-Sloan Kettering, they always ask me if I have a port. To say NO is absolute heaven. Unfortunately, when they ask me if I have had any respiratory symptoms, for the first time, I will have to say YES...cough, cough, cough. UGH.
Be good, Dave. Oh, by the way, where are some new songs??
Cliff
I smile as I think of the re union you will have with your mum. Your family has been through a lot and you deserve to enjoy your time together.
Lisa
Cliff
Andrea 100 days hip hooray!!! Hope your week has got better :)
Even though I've had my share of hiccups since transplant it still doesn't feel like it was over 18 months ago, more like 6 months. For me the first 100 days were a breeze so I'm hoping you've had your share of problems and it will be smoother sailing from now on.
Nicole x