Keir's 100 day bone marrow biopsy was good, clean of leukemia and the marrow looked like a healthy one should. Soon he will get his port pulled - he can't wait - and now he does not have to see the doctor for 2 weeks, the longest he's gone since his diagnosis in Aug. 2013. I am going to get some therapy to help me deal with my anxiety and the need to now pull back some and hopefully let him begin a more normal life. I will keep reading here, of course, but wanted to take this time to thank everyone who helped me. I well remember the first post I made here, from the family lounge at Rush University Medical Center, a complete wreck and in total shock. I want to pay tribute to the two fallen warriors who responded to my post (among many others ), Andrea and Eddie. I want to thank all of you who prayed for Keir and ask you would keep him in your prayers for as we all know, it's a long recovery and this is just one more step. Thank you all.

Lori -- we hope you will stay with the forum and keep us up on Keir's progress. We need all the good news we can get. We will continue to pray for Keir as he continues to grow stronger. -- dave

Such great news Lori I too hope you stay online and let us know on Keir is doing as Dave said we can use all the good news we can get. I am sitting here with tears of joy gor Keir. I took this long weekend to read his story from the beginning as well as many others. Tell Keir to enjoy the great news and you go get a massage it always helps me with anixety.

Lori,

I just reread your first post "new here, making myself crazy"you and Keir have endured so much. So many ups and downs. You have so much to celebrate. You both have a new normal. I too hope you will continue with us and provide lesions learned to others yet tho travel this path. We all have unique perspectives to share. There seems to bemore care givers on this site which makes your experience even more priceless.

I do also agree with worried, get a message. I am back to my weekly standing appointment and look forward to it all week long. Whatever you do, please take care of yourself

May God bless you and your family

Julie

Lori, I'm so happy and relieved for you and Keir! I'm glad that Keir will have his line removed and can move on to reclaim his life. I am also pleased that you are going to get some help with your anxiety. I am similarly afflicted with anxiety, and it's neither fun nor healthy.

xoxo
Monique

I'm so happy for you and your son. Getting the port removed is huge. The doctors must be feeling really good about how he is doing. Now he can start to move toward his normal life and routine again as well as you. I wouldnt blame you if you eased away from this for a while, but like the others have already said, an update now and then would be welcomed and appreciated. Your and Kier remain in my prayers. This outcome is the way it should be, especially for the young people.

Dave J.

Congrats Lori, so glad for you and Keir!!

So wonderful to have to clean bmb and port removed!!!! I relate so much to how you feel Lori, the anxiety is totally debilitating. I have actual chest pain the mornings we go for labs, I get nauseous in the waiting area and turn greenish white when the doc enters the room. It's totally out of control and so hard to get a handle on. Lying awake all night too sometimes. My hope is one day we can wake up not thinking about cancer!! Hopefully now you can dial it back a bit knowing Kier is well on the road to a full recovery!!! If you ever need to vent -message me!
Xx Lea

Hi Lori,

So happy that Keir is doing well, just wanted to check on you both and see how you are doing?

Sending hugs,
Colleen

Lori wanted me to post this for her. She has been advised by her counselors to stay off this forum for a while because she tends to take things very hard when there is bad news here. She is not the only one with this issue, and for sure, ALL of us are REALLY down when we lose someone. And if this does affect a person physically and mentally in a negative way, then for sure they need to do what is best for them.

Here is what Lori wanted me to pass on to your:

Re: Keir: If you could post that he is five months post transplant and his bloodwork is normal and he's feeling overall well, that we request continued prayers he would remain healthy and that next month they hope to start taking him off some of his medicines. Also, that his doctor said he could get a flu shot this fall. Thank you for that. I continue praying for everyone on DS of course.

I will continue to keep you up on Keir -- what a tremendous adventure he had -- do you recall all of the setbacks? Things really looked bleak for quite a while and Lori had to even take him to another hospital to get reasonable medical treatment. But he is doing fine now and should be an inspiration to all of us.

I know none of you will blame Lori or anyone else who really has a problem when things are not going well in this community. We KNOW that bad things are going to happen, and we pray that all of the good things can more than balance them out, but it is extremely difficult for everyone when there are setbacks.

Let's all continue to pray for Keir, Lori and her family -- her mother is aging quickly and not doing very well. They all need our prayers. Thank you all so much -- dave

PS -- I would be glad to relay any messages back to Lori.

Here is an update from Lori

"Keir is doing much the same, and we ask for prayers that his bloodwork continues to be good at his next clinic visit Wednesday the 30th I'd be grateful. He signed up for two classes this fall and is very anxious to get back to his life."

So, very good news.

If any of you would like for me to relay a message to her, please let me know on this thread. Please be praying for her, Keir and Lori's mother as well who has been suffering greatly over the past month or so. -- daveB

Dave,

Thank you so much for the great update on Keir! Please tell Lori my family prayers for hers daily.

Julie

Dave

Thank you for the update I was thinking of Keir today and wondering how he was doing. Please let Lori know that we are thinking and praying for her, Keir and her mother.

Karen