Acute Myelogenous Leukemia (AML) Support Group
Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.
Hello all, I've been lurking and reading for a while, now looking for advice and/or the benefit of anyone else's experience. My sister was diagnosed in early June with AML. She is currently inpatient at Stanford Cancer Center. Her cytogenetics and just about everything else put her in the least favorable risk group. She is 64 (but in extremely good health prior to this), her wbc count was over 500,000 at diagnosis, and she has chromosome 5/7 deletion. Following her first biopsy she was advised that she would need a BMT regardless of whether induction was successful, and they went ahead with HLA typing for my other sister and I well ahead of the normal time frame. She has had 2 rounds of induction which have brought her blasts from 85% to 15%, but still had peripheral blasts after round 2. She started induction round 3 last night, which has been described to me as a new drug that "stimulates" the leukemia cells followed by a higher dose of the previous chemo. She tolerated the first 2 rounds fairly well, fatigue and mouth sores being the worst effects. Now the good news, we found out yesterday that I am a 10/10 perfect match. I am pushing them to begin the BMT process right away, since as I understand it she will probably need to go that route regardless of remission success. The problem I am running into is that she has not yet met with the BMT team, and she's not even "on their service" yet. As I understand it if remission is achieved it may be short lived, and I wouldn't want to miss a window of opportunity for the BMT due to administrative procedure. I'm really pushing them. I know there's a lot of procedure involved, but again I don't want to miss a window based on "procedure". Any advice or personal experience is appreciated.
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Praying the BMT goes smoothly as it's a long road ahead.