Greetings!
Christina was moved out of the ICU this morning and is now on a regular heme floor. She was able to say a few words, smile, nod her head, wave and sit in a chair for bit. Much progress the past 2 days. Hopefully she will keep making strides and will be able to soon continue to combat the leukemia. Thanks for all of your prayers and support!!

Oh Tom that is great news. I will join Julie in thanking the Lord for hearing our prayers.

Hugs and prayers.

Karen

My thoughts and prayer are with you and your wife. I know its scary but she will pull through fine.

Im on ASP2215 also. Its not a Chemo drug in the normal sense. But It acts like chemo, your counts go down just like chemo treatments. I think this drug is wonderful for FLT3 AML,
Im praying we all get remission from it !
Hang in there Cristina, you'll pull through this

Just getting out of the unit it a GREAT step in the right direction. I guess she is very happy to be free of their rules and able to do a lot more things than they let you do in ICU. We continue top pray and thank God for every sign of improvement. Thanks for keeping us up -- dave

Hello Everyone!


Christina is making small steps, still a lot of confusion, can't walk or eat but putting some sentences together. I spoke with the neurologist yesterday and they think that the PRES was caused by the asp2215, so they are recommending that she not do that again, which puts us in a holding pattern for combating her leukemia. Her counts are way down so that is good but we will have to figure out where to go from here. Thanks again for the prayers and support!!

Tom

Hi Tom,

Not sure where Christina is being treated but wondering if anyone has mentioned AC220 to her as a treatment for the flt3. I know of a few people who have used it in the past and had success with it. Just thought I would pass the info along in case it can help. Continued thoughts and prayers for Christina.

Praying for you and Christina, Tom. Little steps are fine, especially when they are in the right direction. I am glad that her counts are down, because it gives her time to recover in other ways. I am sure that your love for Christina is helping as well.

Cliff

Thanks for all of the support!!
Christina is starting PT, OT, and speech therapy. She doesn't have a well defined swallow and her cognitive functioning is impacted. She still doesn't know where she is or why and has extreme difficulty with recognizing people, even her kids and me. She does have some of her old humor coming out, which livens up the room a bit. The docs have decided that she will no longer be a candidate for the asp2215 and we will have to figure something else out to treat the leukemia when she gets stronger.

Tom

Tom

I am glad to hear that Christina is getting better and starting therapy. Sorry to hear that she is having problem recognising everyone and that they will no longer be giving her the asp2215. I pray that they find something that will help and heal her.

Hugs and prays for your family.

Karen

Praying for Christina. I hope that after the asp2215 get completely out of her system, she will begin to improve neurologically. I'm glad she is doing the therapies. Hang in there Tom.

Praying for god to give you and your children strength through these hard times. And for Christina's cure.
DaveJ

Tom,
Always Praying for God's healing to get Christina through this and onto the next phase toward recovery and a cure
And for strength for u and your family.
Xo
Lea

Thanks Everyone for the prayers and encouragement.

I just spoke with Dr. Hashmi Christina's heme/oncologist and the team has decided that Christina will not be going for rehabilitation. They feel that she needs to start chemo as soon as she is able to give her a chance against the leukemia. He thought that if she keeps improving that they would be able to give her chemo in 3-5 days. He stated that if she doesn't start the chemo or decides not to do the chemo she would only have a matter of a few weeks to maybe a month of survival. Christina and I have discussed at length her wishes and she has stated that she wants to fight, but that she also does not want to be stuck in, and die, in the hospital. They are going to use Clofarabine during this chemo round. Does anyone have any experiences with this. I know it is usually prescribed for ALL, and only occasionally for AML.

Please keep Christina in your thoughts and prayers,

Thanks,
Tom

Tom,

I truly pray for Christina throughout my day. Please Lord heal Christina! Praying for you and your family as well. May God grant you peace.

Blessings,

Julie

Tom

I will continue to keep Christine and yout family in my prayers.

Big hugs for you all.

Karen