Acute Myelogenous Leukemia (AML) Support Group
Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.
Hi, My name is Debbie and I live in Baton Rouge, LA and my husband was diagnosed in February with AML. He was in hospital for 41 days and rehab for two weeks and finally came home April 18th. It has been so hard on me because he had the hospital delirium and was in ICU for a while and port got infected had to remove and one thing after another.
I took leave of absence from work and just returned a week ago. He is in remission and still going to outpatient therapy to gain strength in legs and body. This is so scary and he has had low platelets for over five years and never dreamed it would be leukemia. Does anyone else know if it affects the muscles and joints as he is having lot of problems still getting up walking, he does use walker and cane. He had WBC of 2.7 on Monday and platelets were 39,000 which we deal with often but they are holding off on more chemo unless absolutely necessary.
If anyone can give me encouragement I could use it. I am 64 and my husband is 72.
I took leave of absence from work and just returned a week ago. He is in remission and still going to outpatient therapy to gain strength in legs and body. This is so scary and he has had low platelets for over five years and never dreamed it would be leukemia. Does anyone else know if it affects the muscles and joints as he is having lot of problems still getting up walking, he does use walker and cane. He had WBC of 2.7 on Monday and platelets were 39,000 which we deal with often but they are holding off on more chemo unless absolutely necessary.
If anyone can give me encouragement I could use it. I am 64 and my husband is 72.
I miss being more active on DS. I read the postings frequently, but often feel so out of the loop that I don't think my two cents will be of value. Nevertheless, I read every one of your bible postings to my email at least 3 times each, because they have lifted me up over these many years in ways that are hard to describe.
I just want everyone on DS to know that there is always room for hope. Years ago, I posted about a patient of mine who had testicular cancer that had spread throughout his body. Everyone had given up on him, and he went to Sloan Kettering for a trial. The medication he was given was cis-platinum, now a mainstay for the treatment of germ cell tumors. He was SAVED by an experimental treatment (at the time). I am begging all of you who are beyond frightened by this disease and the prospect of suffering through a treatment that may not (at first) work. I FAILED MY FIRST INDUCTION and was so ill that I do not remember my ICU sojourn. I nearly died. Here I am now. I am back to being a gym rat, and, for a 62 year old, I am in excellent shape. I lift weights like a 20 year old and have tremendous stamina. My treatments were tough. I too often got blindsided by the present and could not look at the big picture. That is normal and so human.
For those of you who have not responded well to treatment, I advise you to take the chance and go to one of the several meccas in the U. S.....Memorial Sloan Kettering NY), MD Anderson (Houston), Johns Hopkins (Baltimore), Fred Hutchinson (Seattle), and Dana Farber (Boston). There are many other excellent places that I have not mentioned. Remember my patient. He took a chance and is alive today. Not everyone will beat the scourge of AML, but it is worth exploring every avenue to be cured.
Now I am dealing with my brother's hairy cell leukemia. He is beyond anxious about it, even though it is an indolent leukemia of the lymphocytic cell line and responds well to treatment. I will be going with him to Sloan Kettering on Tuesday, in part to keep him calm, and in part to ask a million questions. Although I have never read about my own disease (and I encourage all of you with AML to use your physicians as an information source and not use the Internet), I want to understand everything about his, so that I can be a source of encouragement for him.
I want to be the same source for my friends on DS.
Cliff
Hugs
Lea
I only now found out about Russ and am truly sorry. When you love someone so much, their passing becomes a cloud that never seems to dissipate. I lost my mother (other circumstances) in June 2014 and still cry often when I think of her.
I pray that you will find outlets for reclaiming your happiness. You know that we will all pray for you.
Be well,
Cliff
I am so sorry for your loss
Julie