Hi yes some days its a struggle to do anything I was diagnosed December last year and amhaving many other health issues

I was worse off a while back. I think I'm improving. Drinking water and being just a little more careful with what I eat is helping. Maybe Gamma Knife, which I underwent in May of this year, is starting to kick in. I had surgery some years ago.

I've read a lot of personal experiences of people with Acro that have trouble working. It seems like many have trouble working at all. I think Acro should be considered a disability for some, and that they should be able to get disability benefits. For me personally, we've been financially able for me to be a stay at home mom. Since my Acro has been controlled by meds pretty well in the last few years, I was able to take a position on a music boosters group, and to work part time around 20 hours a week from home, plus I have 3 children with extracurricular activities (2 in high school). But it's definitely still a daily challenge. Some days I still don't want to get out of bed, I'm depressed or anxious, or I'm going to bed early because I'm so tired. I try to avoid my known stressors ahead of time (crowds, long social interactions, driving long distances, etc).

Hi Carebear!
Evidently, we're all experiencing this disorder differently. I was diagnosed in '07; with many symptoms but no significant effects that prevented working. For a short while, I had great difficulty walking up a flight of steps. Now, I am somewhat taken aback by the realization that recovery from surgery may take as much as 6 weeks!

A very well respected, knowledgeable patient had to discontinue working - and various aspects of his life were seriously affected. Do what you're able and keep up on the literature- you must advocate for yourself.

Hope you have better days ahead.

for myself Ive been lucky as through some of what acro has done..Ive had people who have actually quietly come in and been a guardian angel..they have actually kept me going ..some have put themselves out to keep some of the jobs Ive been in..

I am working as a controller(accountant) but my production level is way off what it used to be because of memory concentration and chronic fatique. I was diagnosed and had surgery 3-4 years ago and will try to work as long as I can. I am just lucky I don't have to work overtime anymore like 50-60 hours aweek for I could not do that and now during the week all I can do is work 40 hrs. barely (most of the time)and veg out at night during the week. It makes it much harder that is for sure. I have a good set up at work right now but if things change I might be in trouble like ownership change or something lke that. I think pushing yourself always helps but it is really hard to do a lot of the time.

Have been fighting this beast for 14 years come next January and while I was able to continue working for 9 years after being diagnosed, the cumulative effects took their toll with fatigue, constant joint and muscle pain, headaches and the depression. When the economy turned bad, I volunteered to be the first to be laid off from the design staff when the time came.......the stress of juggling multiple million dollar projects definitely takes it out of you.

Since then I've been basically retired and am now awaiting a final decision on my disability hearing as since then the condition has taken even more of a toll on my system...............chronic kidney disease, deformation of the femur ball in both hip joints forcing me now to get a hip replacement in the left hip and will eventually result in a replacement of the right as well. Have been diagnosed with "definitive cognitive and memory issues, that combined with the ongoing depression, make it highly unlikely that I would function to an acceptable level of contribution in a work environment"......at least that's what the Government's own doctors have concluded and reported to Social Security during their investigations.

Like you, some days I don't even feel like getting out of bed. Other days, I get up feeling okay and by lunch, am exhausted and hobbling around the house in pain.............even though all of my levels are within normal range and the IGF-1 levels are the best they've ever been since 2000.

I was diagnosed in April of this year. I have had the surgery and am on somatuline. I am in a professional field, work in excess of 65 hours a week, and travel extensively. I have come to the conclusion that, for me, acromegaly is "normal." I believe that if somebody had my symptoms and condition foisted upon them, it may be debilitating. However, I have likely had ten years to get up to speed. Do not let it slow you down. Go get it.

I had surgery when I was 54 and went back to full time clerical work 6 weeks later and continued that until I was 63 when our jobs were sent overseas. I found a new job straight away but discovered that I had gone downhill in ability but had learnt how to disguise it at my old job. After the op I also went back to race walking and managed to do quite well being ranked about 12th in the world in my age group.

I only lasted a few months at the new job and had to go on to a disability pension as I was not up to full time work. I did some part time work after that and still do and can still walk 5kms in about 33 minutes and I really feel for those on here who have not been as lucky because some days I do feel lousy and just want to sit and vegetate.

I couldn't work after my surgery for about a year I was depressed. I was on antidepressants for couple of years then i went back to work, couldn't cope and unfortunate for me my new Doctors since i moved in a new area they didn't know my condition much told my employers I was fit to go back to work then with little to argue i went back then it was so difficult for me till i stay home without any excuses so i WAS dismissed stayed home for about six months i got another job i couldn't stay to my new job because of my bad temper i got another job. Wow!! MOOD SWINGS. there are times i want to warn people to stay away from me when i would be outraged for no reason.These are scaring me now I WENT BACK TO COLLEGE I CAN'T CONCENTRATE. I'm failing all my subjects when I receive my marked paper I always cry in front of everyone,,, silly Acromegaly,,,, I hope u will understand what I was trying to say English is not my first Language,,,,