Acromegaly Support Group
Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). Acromegaly most commonly affects middle-aged adults and can result in serious illness and premature death. Join the group to discuss symptoms, diagnosis, and treatments.
Once I was diagnosed with acromegaly, I was able to look back and realize many of my other health issues probably are a part of the acromegaly diagnosis!
I had soreness in the nipple area. My uncle had had cancer of the breast. It turns out this was caused by excess prolactin.
I developed sleep apnea. Again, this is a frequent issue for acromegalics.
I developed Carpal-Tunnel Syndrome. Yup, acromegaly.
Skin tags.
Sweating.
Headaches.
Crossing of the eyes.
Slight swallowing difficulty.
Mild (so far) arthritis.
Excessive weight gain.
Skin changes.
Feet and hands increasing. Shoe width unusual for me.
Tachycardia.
Any of you have similar or additional effects from your acromegaly?
I had soreness in the nipple area. My uncle had had cancer of the breast. It turns out this was caused by excess prolactin.
I developed sleep apnea. Again, this is a frequent issue for acromegalics.
I developed Carpal-Tunnel Syndrome. Yup, acromegaly.
Skin tags.
Sweating.
Headaches.
Crossing of the eyes.
Slight swallowing difficulty.
Mild (so far) arthritis.
Excessive weight gain.
Skin changes.
Feet and hands increasing. Shoe width unusual for me.
Tachycardia.
Any of you have similar or additional effects from your acromegaly?
Since my surgery for pit removal in aug 2011 I've had bi maxillary surgery to pull my lower jaw back, rhinoplasty to trim my fleshy nose and just 10 days ago I've had my forehead shaved down as it was thick and gave a very aggressive look. My surgeon said the operation took an hour longer because the sheer thickness and hardness of the bone. He burred and filed it down to hopefully give me a lot softer look all round (still very swollen) A lot of people on here have accepted what this disease has done to us facially but for me this has been the hardest thing. Call me shallow.......
Wishing everybody well,
Rose