My face shrank - especially my nose. As did my read end, my fingers, and my feet (my pre-surgery shoes are all too loose, even with insoles). General aches and pains (e.g neck aches, back aches) disappeared. BP went down a bit after surgery, but then went up again.

I know it sounds very vague, but after surgery I did feel generally better, less tired, more 'with it'.

I think that effects will vary a lot among people, but one of the endocrine nurses said to me that people often said that after surgery they felt ten years younger.

John

I do seem to be feeling better........for me, i think maybe there is a direct relationship between the igf-1 level and how i seem to feel; as the level began to decrease i began to feel more energy, less fatigue, achiness and mental confusion.

Although i still do feel fatigue and, overall, i have less stamina than before. I am on sandostatin/pasireotide one shot a month. 60 mg.


Ledgy

I had surgery Thursday and immediately noticed an absence of the joint pain I has been dealing with for 5 years, and my fingers seemed smaller. My skin was also much less oily. I'm scared now though, becaue today when I woke up my fingers seemed to have gotten abjuring bigger than yesterday and therefor some faint joint pain. Does this mean my levels are still high??

Sorry for all the spelling errors. I'm typing from my phone. :/

My surgery was 2 months ago. Overall I feel better. There was an immediate and noticeable difference in my face, nose, hand and my feet. All of my shoes are too loose now. I'm not as tired all the time. I tire out fast but I don't start out exhausted. As far as joint pain, I still have quite a bit. I think there's a point when that won't go away because of damage done to the joints from the affects of the disease. It's better, but still there some. My blood pressure is down and most importantly for me, I've lost about 40 pounds.

Suzanna - I think that probably just means that your body is still healing and changes are happening all over. I wouldn't worry about it. Allow your body time to heal. I'm glad to hear surgery went well!

With me it is a combination! On medication for the diabtic 2 and for the BP also pains still strong and on.. fatige too!! colon very sensetive.
The good side is: Lost too - 40 pounds 3 sizes down and my face is looking better. shoe size same but some swelling is down wrists smaller.
next month will see my prof' so will know how my blood is doing etc'

Just be positive and life will feel good what ever goes on.

Love & Light

I am 3 years post surgery......Initially I felt great as well...I lost 30 pounds... sadly I have gained it all back plus some...I work at it every day...I have slight joint pain compared to what it was it is nothing....I still cacth myself looking at my fingers to see if they are growing? :) It is good to hear so many of you lost weight and kept it off. I need to keep at it.

I was hoping to lose some weight too. Lost about 10 lbs. right after surgery but now seemed to have gained that back even though I am on vegan diet mostly and starting to be more active. My ring is still a bit tight and some joint pain, especially hips. But my energy is much better, back to work. I guess I'm like everyone else in that I'm frequently looking in the mirror to check for changes and worry with every headache and pain.

My ring size has dropped two sizes, I don't snore now (or drool in my sleep), and my laces seem bigger (my feet have just got a bit thinner).

My face generally looks less puffy, vertical wrinkles on my forehead have gone down substantially, less bags under my eyes.

I chase my wife around the bedroom a bit more now, and when I'm quick I manage to catch her sometimes too. Still trying for offspring.

I have no tingling in my hands any more (except very very occasionally).

My hair is softer. I think it's suddenly getting more grey hairs, but that could just be age (41) - it's almost all jet black at the moment.

My skin is less oily. I'm more relaxed and take things with more joviality, and more in my stride now. More confident, and less worried of what I say and less offended of what people say to me. My jokes are getting very corny. As a result I work better now, and come up with more credible innovations in what I do as an engineer.

I will remain with a typically "acromegalic" face I believe, but this is how I am, and I'm more than content with this. My lips don't get cracked any more.

All these changes are subjective, things were good for me before all these things happened anyway.

I do hobble a bit with my left hip some days, it comes and goes, it doesn't bother me. I have prognathism (lower jaw), but I cope well with it.

Blood pressure is much better controlled now (on meds).

Things are good! You have lots to look forward to!

Trys
www.acromegaly.wordpress.com