Very nicely done. I can't believe how perfect the song is. What is it and who sings it? I still have leaky eyes Floucy...... How long did it take it you to make it ?

its called the scientist by all angels. last year when i went through my bad patch i listened to it all the time and it helped so much thats why i chose it. im glad its ok. i was quite anxious about putting it up on facebook as none of my friends know about it. well they do now. that was a big step to take, but its worth it. we need to get more awareness about acro around the world. more people may get to thier docs for help.

oops forgot to add, took me 4 hours yeaterday to make it. but it was quite fun at the same time. made me realise how far i have come and im actually a fighter. that amazed me.

Nicely done. I think we really need the word out there, so people can be diagnosed a lot sooner than some of us were.Thanks for getting that out there.Song was beautiful too.

You go girl. You make me soooooo PROUD and YOU talk about inspiration.You are an amazing and wonderful woman, you are.

And that song! I think that should be our official theme song, what do you think?

That video is nice work.

You are a fighter and a winner. Now, I'm thinking about being brave enough to send it to lots of people and educating them, too.

Big hugs,

Rose

wow rose thank you xx
well send it!...lol thats what i made it for to kinda educate ppl in 2 mins a snipit in the acro life. and yes defo for me for the song.i always listen to it and think of last year and the hardships i went through.ive got it as one of my faves on youtube if you wanna see the full song.

GREAT JOB, Ms. Flouncy...you are an inspiration!!

dang girl your an artisit...It was actually relaxing reading it..I am not sure why someone who just got diagnosed shouldn't see it...I think it is honest but gentle enough...I will have to listen to it a bunch of times...I want to buy the song...are any of the fotos Flouncy originals??? also how do you get something tagged on google...it would be cool for people to see it...if they search acro...anyway great job...!!!

mctrjt, i think i finally spelt it right...lol
guess waht!! i just googled acromegaly awareness and my vid is second on the list. i cant believe it. are you to blame for this goodness???
40 ppl have seen it now most of them complete strangers just typing in acromegaly. and the comments that people are leaving too. i never thought that people would be thanking me for making it. amazing. and the pics i found online apart from 1 that was already on my comp. but the vid doesnt come up when you put juts acro so maybe i will look into it as i dont know how to tag items in google.

I got up and had to see how many people have seen it forty already they say silence is golden but not in the case of the Acromonster its not its been to long been kept quiet whilst sneaky ass has been playing its games people dont understand if you try telling them but you putting that together with such words from that song can maybe help people understand of what we go through not only us but people around us who suffer also.Well the games you play Acromonster the rules are changing people will be more aware

jokey did you say 40??? blimey and guess what since then another 15 people have seen it !!! its now at 55. wow thats a lot of ppl to me. ive been a bit cheeky and used facebook to get it out aswell...lol most of the acro groups, piti tumour and brain tumour. i looked for anything i could to post it out there to get the awareness out. im gunna be all squeezed out by tonight. but sadly no reply from the big acro websites i contacted. fingers crossed.

I am going for a heart check and does it show up how many times it is just put through it so many times recently has my heart so gone.My son watched your video Flouncy hes sixteen and he came up to me and gave me the biggest hug ever ANY ONE GOT ANY TISSUES SPARE :)

Flouncy, that was so lovely and very well put together.I really hope it does raise peoples awareness about this horrible condition of ours.
Hope you are keeping well.

Great job...nice vid...

I really enjoyed (?) your video. In just a few moments you present a lot of info. More people need to be aware of what we face. It took courage, and I'm proud of you for speaking out. I think I am just now becoming really aware of the realities of what it means to have this constantly hanging over your head. Even if you have a "best case scenario" now, you always know the possibility is there for everything to fall apart at any point in the future.