Im on Somatuline Autogel and apart from the black mood a week before and feeling sick first day of having injection it has been really good would not be able to work as alot of symptoms have cleared up since being on it

Feel sick to my stomach and headaches after injection.

Hi everyone,
We are conducting a clinical study on Somatuline Autogel. Somatuline (R) Depot has already been approved by the FDA. These injections are similar to Sandostatin LAR but the formulations are not as thick. The primary objective for this study is to assess the ability of patients with Acromegaly to self administer these injections. So that means you don't have to go to your doctor's office anymore to get these injections! You can store these injections in your refrigerator. This study is at no cost to you. Please call me for more information at Research Institute of Dallas. My number is (214) 265-2157

Interested in finding out more about the injections and the simularities and differences. Oma2

It appears my "cure" is now in question. IGF-1 levels going up. Now dr. wants to start pegvisomant (somavert). Anyone had experience with it? What about side effects? Coping tips? Success?

Hi,

My daughter has been on Lanreotide autogel 120mg every 21 days, she has been fine, but has lumps in her backside now after all the injections, we mentioned this to endo and he
said may haver to change soon, been on this medication a year.

Hi,

As far as I know Pegvisamont has to be injected 3 times a day by youself, also liver levels have to be checked frequently, but its supposed to be the gold star treatment,also very very expensive, some people just cannot get on it. Hope this helps, if im wrong, somebody im sure will be more informative. Bye

Spiegal, I am exactly the same as your daughter, I have a lumpy bum,I've been on Lanreotide coming up to 4 years.
When I first had the injection I did feel a little queasy and headachie usually only for that day though,but that soon passed after a couple of months and then I must've gotten used to them.

Bebellsha,sorry I just read your post, there is no way on God's earth I could administer one myself even if it was thinner, it's like applying wax, can't do that either, but I'll let a trained professional put it on me and rip it off. LOL
How is your study going?

Hi Aussiefay, welcome to the forum, my daughter has been on lanreotide injections over a year now, and also now cabergoline,told endo yesterday about the lumps, he said we can try you n something else, but we still have a few of these injections left and as they are expensive, in other words, he wont change her till he has used hisstock, which i think stinks, if you were on a tablet and it didnt agree with you, you would be given an alternative. I feel he treats her like she has a boil on the bum, not a tumour, sorry for the rant, hope everyone has a nice weekend.

I cant imagine self administering this injection, how on earth would you be able to inject it into your butt youself, yoga lesons maybe

I'm on somavert...it was a godsend. sandostatin killed my GI tract.

somavert comes in 15MG and 20 MG vials so it depends upon your dosage as to how many shots you get. They are also subcutanious(sp?)(insulin needles)

I am on 45mg daily, so I take three shots a day, all at once before bed.

Thanks for the input, it helps a lot. Anyone else?

Hi Jeri T

Can you tell me how you inject, does it have to be in the backside, or can it be injected somewhere else, my daughter used to inject ocreotide 3 times a day, before lanreotide injection, and hated doing this herself, but if it works better, do you think you feel a lot better taking Pegvisamont,my daughter says she doesnt feel any different before injection or after, so I dont know if its doing her any good,I know some people have to take 3 shots 3 times a day, but just the once at night seems so much better. Thanks

Hi again,

sorry, I was meaning she doesnt feel any different on lanreotide, she may have to go on Pegvisamont injections.