Acromegaly Support Group
Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). Acromegaly most commonly affects middle-aged adults and can result in serious illness and premature death. Join the group to discuss symptoms, diagnosis, and treatments.
Hi Everyone,
My surgery went so well - no complications! And, the doc told me he thinks they got all of the tumors - I had three!!! This makes sense, since I was diagnosed with both Cushing's disease and acromegaly.
Aside from feeling like a have a sinus infection and being very tired, I am doing well.
Thank you again for all of your well wishes. I know it made a difference.
My neurosurgeon told me I won't know for a while whether the surgery worked. So, I am wondering how you knew you were getting better after treatment.
When did the acne stop?
For women - when did your periods start up again?
For low thyroid people - when did your thyroid kick back on?
I feel content and like I can be patient, but I would just like to know what to look for.
I hope you are all very well.
Hugs,
Katie
My surgery went so well - no complications! And, the doc told me he thinks they got all of the tumors - I had three!!! This makes sense, since I was diagnosed with both Cushing's disease and acromegaly.
Aside from feeling like a have a sinus infection and being very tired, I am doing well.
Thank you again for all of your well wishes. I know it made a difference.
My neurosurgeon told me I won't know for a while whether the surgery worked. So, I am wondering how you knew you were getting better after treatment.
When did the acne stop?
For women - when did your periods start up again?
For low thyroid people - when did your thyroid kick back on?
I feel content and like I can be patient, but I would just like to know what to look for.
I hope you are all very well.
Hugs,
Katie
and then in the months to follow my hands started to get smaller, my rings were huge on me, and then my feet started getting smaller as my shoes didn't feel tight or uncomfortable.My levels continued to fall but weren't falling as fast as the endo had hoped so she started me on Lanreotide monthly injections which helped make my levels fall even more.
Gentle hugs,
Rose
My acne stopped right away and my skin actually got dry, by fingers and feet went downs too, didn't feel "poofy" I am sending positive energy and thoughts your way and praying that the AcroMonster is dead!! And the Cushing one too!! Keep us posted on your progress and even though you may feel good DON'T try to do too much!!
PS had a hysterectomy before I was DXed so...no answer about the period...
Trena
Brilliant news! Fantastic :)
The acne might be a really good sign - it probably just shows that the hormones have just changed considerably. You're a teenager again! I'd imagine that your acne will just calm down of it's own accord.
Trys
I am still not really feeling any different. My pathology report sounds a little disconcerting, so that may be why. I will let you know more when I have all of the information.
Either way, I am still so relieved to be recovering well and to have the support of this wonderful group. THAT makes a difference!