Achromatopsia Support Group
Achromatopsia is a medical condition (also called maskun or rod monochromatism) characterized by a low cone cell count or lack of function in cone cells; these are the light receptors responsible for color perception. People with maskun have difficulty seeing in bright daylight.
I found a Low Vision Center online that states that they have equipment, such as red center contacts and bioptics, to help people with achromatopsia.This center in located in Indiania. What I need to know is how do I find out if the center is reputable.
deleted_user
You did not include the name of the Center but it is probably the same one we went to. My daughter has red centered contact lenses from a Low Vision Center in Indiana (can't remember the name) she got them about 5 years ago. She wears them occasionally, and they are very effective for filtering flourescent light, however, she still needs sunglasses for sunlight. This is consistent with what they told us when we got them. I plan to return to the center when she is 16 because they also give driving lessons to people with Achromatopsia.
deleted_user
I am able to drive with achromatopsia it is scary at first but I think everyone gets scared at first. She will need to derermine though what she will need to see the best. I use the tinted contacts, glasses with script and a bioptic scope for spotting signs and anything on the road up ahead, and I also where sunglasses ontop of all that. Its alot but I have been driving for over 6 years.
deleted_user
We have opened www.Achromatopsia.info. It covers all aspects of achromatopsia including different type of filtered contact lenses many developed by our doctors.
Join the Conversation
-
My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...