Achromatopsia Support Group

Achromatopsia is a medical condition (also called maskun or rod monochromatism) characterized by a low cone cell count or lack of function in cone cells; these are the light receptors responsible for color perception. People with maskun have difficulty seeing in bright daylight.

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  • deleted_user

    What made your public school experience successful

    6
    I have a 5 year old son with achromatopsia. He is just starting out in school and is not always able to tell me what he needs. I would like to know what helped other be successful in school.
  • arnab2015

    Prophylactic treatment to prevent the transmission

    1
    Colour blindness as we all know comes from generations and carries forward in the next generation. I am Mr Arnab . My father had colour blindness, also my 2 brothers and I had it.Later on I did come to know about the prophylactic treatment of colour blindness. I underwent the treatment 8 yrs back and I have 2 children both are male. Yesterday I got their colour vision checked and they are found...
  • heretohelp72

    I am alone in this.

    1
    I wrote 2 long notes and had to erase them It is too much and my battle has been to long. Frankly it hurts to much to think about what happened when I chose to go to a doctor to treat anxiety and depression as a young adult. I am very alone and for good reasons. Why? Why did something that was supposed to help me recover from my abusive home as a child turn out to be fuel to hurt me as an adult....
  • Since I was little I've struggled with a red-green color deficiency. I accepted this diagnosis just fine until I got older and realized that I just can't remember colors. There are colors I get right far more often than others... pure yellows and navy blues are my strongest colors. Reds, Greens, Purples, Browns, Oranges etc... I get wrong almost every time but never wrong in the same way. There's...
  • deleted_user

    Lack of motivation.. Ugh!!!

    3
    So I'm still in the process but my insurance wants us to loose 5% of your weight in order to qualify. It's been aMonth since I weighed in so this will be my 1st one on one with the dietician. Problem being is in 100% sure I gained weight... I know I did I have not done one ounce of exercise nor have I been eating well... I have no idea what my problem is... July is a busy month for me 4th of...
  • deleted_user

    Invitation to STUDY THE WORD group

    0
    Here is a link to a Christian group if anyone is interested in visiting or joining. It is a good place to learn about God, study the Word and fellowship with other Christians. Thanks. http://www.dailystrength.org/groups/study-the-word
  • deleted_user

    what to do now

    0
    My 2 yr old daughter was recently diagnosed as having Achromatopsia. We still need to have genetic testing but I feel like it she has this. We are working with Morehead School for the Blind and have had an orientation and mobility specialist give us a pair of red sunglasses. It was amazing to see that as soon as she put on these sunglasses, her eyes opened completely. No more squinting! I...
  • Ever since I was little,I felt like I was trying so had to be like.Trying to be like my average height sisiters,and gain some friends and go to the parties and have people see me as they see my sisters.I felt like I was either buying my friendship of dealing with their abuse (not physical but mental and emotional)I I don't know if this is common,but just want to know if it;s just me?
  • 71790

    My "Boyfriend" Has Achromatopsia: What d

    3
    My "Boyfriend" and I are both freshman in college. Ive only known him for going on a month now, but he is amazing. I guess what im trying to get at is i want to know all about it. I have Trichotillomania, and i hate it when people just assume they know what its all about. I want to know how to help and be the best supporter he has... I see him get frustrated when dumb kids make fun of him, even...
  • deleted_user

    Doctor

    3
    I found a Low Vision Center online that states that they have equipment, such as red center contacts and bioptics, to help people with achromatopsia.This center in located in Indiania. What I need to know is how do I find out if the center is reputable.
  • deleted_user

    just a test

    1
    http://www.youtube.com/watch?v=2gO-OYUKzG4