dawnc4t
Status: Doing ok accepting taking each day as it comes
Mood:
Ok
Offline
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Feeling absolutey exhausted ,very hard to function at work when I can't remember one thing to the next . I hate this feeling of absolute exhaustion practically crying tired as it is so frustrating .I...
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Physio monday ,got apt through for the nerve tests and the doc reconfirmed what I told him the other dr had said about the muscles in the oesophagus being very weak and acid relux very bad he still...
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Saw gastroenterologist today he wants another endoscopy 3 years since the last and I hated the last one it felt like they snagged the tube getting it out and coming round was no fun .He had not got...
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Saw the rheumatologist today ,she says I have carpal tunnel syndrome in my wrists ,so I now have some awful looking splints to wear she is organsing a scan so they can inject my ankle to as it is not...
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Tas was ill again being sick her weight is very low 7 st 4 pounds .I am begining to wonder if she has sjogrens like me she has jra but it is monoartcular still as less then 5 joints. Doc did blood...
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reading the earlier posting made me dig out the paper work for the blood work .I wonder what other people have too . Positive anti -Ro ,anti La and anticentromere antibodies . Positive ana 1:1600...
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I went to tai chi and swimming today .I don't know if I am going to be able to continue with the taichi my ankle always aches so badly after wards .I keep trying but the pain afterwards it pretty bad...
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Finally stopped being sick been such a long time .Managed Taichi but limping bad still . I had a fantastic weekend went and got my wedding dress and bridesmaid dresses with my sister and daughter I...
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Am accepting I am just not going to let the fact that I am no longer able to do all the things I enjoyed before but I can do some of them or change the ones I do . I am becoming more aware of...
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I passed my intermediate Iseb exam ,even though I came in after being off sick ,I got an excellent mark ,one in the eye for my boss sure he didn't think I would even pass it .I did it and I can do...
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It has been the best part of 7 -8 months now and I am still wondering what will happen ,trying to keep upbeat is difficult when you feel so scared .Hiding that your scared is the hardest ,what...
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I' m still on Imuran 6 months in now and constantly feel sick and nauseous ,joints feel better though .I am finding it very hard to work feeling like I want to throw up every few minutes .Still on...
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Have neen on the Azaithprine for 2 weeks now my liver alk p was 150 before and considered high .I am now wondering as I see after 2 weeks it is now at 248 but no news from the nurse as yet .Apt due...
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Day2 of having the swine flu vaccination still feeling very hot and limbs ache got sickness too .My arnm aches to say the least it hurts to lay on it .Hit me like a ton of bricks after having it on...
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Took Tas to the children's hospital very frustrating time with the physio sure she is well meaning but I don't think she is hearing me .My daughter has had Jra for 11 years now I know to try...
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