crazygypsy1953

About Me

I had a DVT in my right knee in April 2015. Couple weeks later it broke off and caused a PULMONARY EMBOLISM. That makes 4 blood clots in my body that they KNOW about. Just trying to connect with other people who have had a PE and can shed some light for me of what to expect my life to be like from here on out. I don\'t get on here very often, but wanted to update you all. Now that it is mid OCTOBER I want to report to you that when I had my PE the beginning of May I was so discouraged that my summer was going to pass me by without any OUTDOOR FUN. I was walking 1 mile per day and wondered if I ever would be able to do that again. But I persevered with a half block first week, 1 block 2nd week, 2 next week and pretty soon a whole round the block! I kept pushing and after 3 months could do a whole mile. I DO want to add that my dog and I do the mile walk very slowly and doddle a lot along the way but we can still do it and I\'m so excited that I CAN do it! So just wanted to encourage you all that you can do just about anything you can put your mind to for recovery from a PE. I am currently on OXYGEN at night only, and have been for 5 months now. Did a couple of sleep studies and determined sleep apnea very recently. So during the study dr says i will not need oxygen fed to the CPAP machine I will be getting in a few days. So YAY for that. I really never thought I\'d be able to walk a whole mile again for the rest of my life, but I PUSHED real hard and after 3 months of walking diligently daily little bit at a time increasing with each week...now I can! So don\'t get discouraged and remember also that for every 3 steps forward it\'s one step back and I have had to cut back on my walking again and again but determined over here. When it gets HUMID outside I am worthless and gasp for air. So I know not to walk on days like that. Now that the air is starting to cool down it is much easier to walk and do anything for that matter outside. So HANG IN THERE if you have recently been diagnosed with a DVT or PE or both.....there is hope.