what day is it...?

thankful for electricity.....without that i couldn't hit the return key which brings up the screen which tells me what day it is.  so hello tuesday.


the weather must be changing.....getting cooler, my body is reacting like crazy whether it's weather based or not.  feeling cruddy.......


ate a late breakfast......my tummy didn't hold on to it for long.  why am i telling anyone this?


i don't know, alone alot......the truth is well......just the truth.


see the other day my tummy got really bad cranky so i took two tabs of an anti-diahhreal med.  the next day i had pain in my lower intestine.  it came on suddenly.  it was harsh, doubling over kind of pain.  so i sat still......and thought this too will pass.  if i don't panic, if i remain calm.....if a ease myself through this....it will GO AWAY. 


i tried a few times to rise, but could not.  the pain was very insistently intense.  felt like something was stuck or in fact kinked up inside an internal pipe.......if it could wend it's way through i could move on with the day.  after a time it just stopped hurting and i put the rest of the laundry away.  tidy girl on a mission.


this morning i had dishes from several meals waiting on the sink.......and a full dishwasher with clean dishes to deal with.  it seemed impossible, so i turned back to the bedroom and talked myself into a hot shower.  showers can be hard to manage, but the heated water is so therapeutic.  feel so drained as i type these words.....and wonder to what end am i writing.  to again overshare personal challenges like difficult bodily functions? pain, overall misery ......my eyes look semi glazed over.  feel like a bad flu......a different version of the same thing we CFS/ME'ers go through daily. 


wanna give up this life of luxury, bon bons......endless glory and fun.  and just be a normal klid.  a regular person.  some aches and pains.  a bit of tired now and again.  not this overwhelming need to stay under the covers......to ease the pain, to try to sleep.....to fend off the endless feelings it can bring on.  not hopeless exactly.......not in a dark place really........just thinking that if i haven't managed to make friends ....as in pals to hang out with in my community live after several years of trying.......then will it ...can it change? am i what exactly?


well i can't be counted on really.  a plan breaker for years.  can't do a lot of the stuff other people do......so that leaves me on the sidelines.  not only on the sidelines but in my own nest......so if the sidelines are featured on tv, that is where i sit.  what am i going on about?  here marches our little friend, brain fog. 


lost in space.....spaced out.  space cadet.....so much space.  space of my own for too long.  what have i tried?  visiting churches, bible studies, a community luncheon monthly (as i am able)...


i am usually the one who initiates time with my kids.  i make the plans. i call them first.  to get a get together arranged.  which is not worth brooding about really......there are a lot of people out there who are bad planners, decision makers......and yet they are excellent company.  if left to them to plan, unite and hang out it will never happen, they need the gentle prodders like us to get them out there......


sorry, i have to stop typing, i can't figure out what i am saying.....or why really. and i think just another ramble going nowhere......nothing to cry over, just need to hunker down in my soft little cozy bunker and be quiet.  be still.  pray and rest. rest and pray.  the end........p.s. thank you for you.  for this day. for time together.  for letting me talk....whether it's P.C. exactly or not......for forgiving me, for laughing with me, for sharing your wisdom and your kindness.  amen and amen.


Replies

DarlaC
DarlaC

Dr. DARLA here! Just a tad concerned about that bad intestinal pain. Do you have IBS? TMI.? Sorry. Just want to make sure you don't have an intestinal blockage. That requires medical Attention! You can PM me of you like! Just looking after our wonkie birdie!!!

Just keep rambling, well keep loving on ya! ♡♡♡♡♡
triunfadora
triunfadora

I know what you mean. I hate it when I get really sick and I am alone and I think to myself, "Who would I even call if I needed help?" Most of my friends are straight up sick of me not showing up because I'm sick again. I have been recognizing recently that I have emotional needs that are not being met. I don't have a lot of physically present friends. I go for a week at a time without seeing anyone outside of my family. I know you don't even have family at home, so why am I complaining? Anyway, I hear you girl. It is rough to be alone so much. Love you.
aussiedi
aussiedi

Well dearest Ruthie. I'm happy that you journal about anything. You give me comfort. This is the third day flat on my back.I had the night from hell . Couldn't sleep and had bad heart tachycardia. I was sitting on my bed trying to decide whether to call the ambulance. I just stayed in bed and suffered. I wanted to go with Frank to the shop today, but it's not possible. I actually got in the shower and organized clothes to wear, knowing full well I was being stupid. By the time I had dried my body I just collapsed on the bed. No strength to get dressed.No strength to leave this house. Sometimes I try to fight and tell my body that I will not surrender. It never works of course.Down I go. So I am here alone just lying on this stupid bed again while people are out THERE !! Living .I'm Mrs negative misery bum again. You are so blessed to have my uplifting association lol!! I'm sorry Ruthie. It's so hard for all of us being continually ill. It's lonely, frustrating, and disappointing. A million other things too. What can we do? We can't do the impossible. What a pity we don't all live near each other. I would just throw something daggy on and catch a cab to your place. You could kick me out as soon as you had enough (maybe half an hour. ..or 10mins lol ) Oh dear. Or we could have a little cfs party with some of the girls. No expectations.Just a blob out little giggle party. We could just lie down wherever and do nothing together. Whoever had the most energy on the day would be nominated to make some tucker OK. I'm going to get my head into positive mode now . I've had enough of Mrs Misery bum today. I will read my little book "The Secret" and see if I can change my stagnant headspace. Bring about some changes. Gotta do something. This is not fun. Love you heaps Ruthie. Hope your tummy gets better.I probably won't ever get to meet you but I'll remember you until I die.
ladybugdreams
ladybugdreams

Hi Ruthie, as I have said before I love your journals, I love to read how you are doing & what you are making for a meal. Just ramble on, it is fine by me & I understand it completely when you do because we are of like minds. lol. It's called CfS fog. I am sorry you had such pain in your stomach & I sure hope it is nothing bad but like Darla said, you may want to have it checked out by your doctor. Stay you, love you friend, Denise