update-January 28 ,2110
Good morning everyone. I needed to update yesterday but we were just exausted after a day at CMC in Charlotte. The heart echo came first at 10:00 am. Then down to the CT scans. He was unable to have the contrast because his creatine was too high. Therefore the scans were not as clear. Our doctor took us to the scans and compared to when we first began Sutent. He has had some growth since it began in his kidney and his lung. Millimeters. I asked him once what was a millimeter was. He put a dot down with an ink pen and told me that was a millimeter. It take 12 of those dots to make a centimeter. (I guess you all know that) but after 3 years of Sutent he still considered Steve to be stable. It really brings it home when they show you were it is and where it used to be. He told us he was going to present Steve's case for discussion at the next meeting. We are so grateful to be just STABLE. Most of the mets are still there, just not growing. You CAN live with kidney cancer. He is living proof of it. When I told Steve I was writing this about him his concern was for those who are not doing so well. Why does it work for some and not for others? Only the good Lord above can answer that. I pray at night for all of you, patients and caregivers. What does tomorrow hold for us, we don't know. I just know when it comes I will do the very best I can for him as he will for me. PS He told Steve to avoid caffinated drinks-tea, coffee, sodas because it was too hard on the kidney. So the tea he loves will have to be modified.( Everything in moderation) Love, Wanda
Replies
Hi Wanda,
Thanks so much for giving us these updates. Please let Steve know that we understand that some medicines will work and some won\'t for our loved ones, but we get great joy in hearing that even one person is having good luck with a particular drug. In our case, my husband (8 year survivor) had moderate luck with Sutent...however, we know how fortunate he is to still be able to fight this disease and that is because of the great advances in medicine.
I am happy to hear that Steve is stable. You are both an inspiration to me.
Love,
Linda
Hello Wanda,
You and Steve are an inpiration to many people here.
To find out that it is very possible to live with kidney cancer is such a help when one is newly diagnosed, believe me.
It is good to hear that Steve is stable,
Love
Angelpuss xxx
Hello Wanda,
You and Steve are an inpiration to many people here.
To find out that it is very possible to live with kidney cancer is such a help when one is newly diagnosed, believe me.
It is good to hear that Steve is stable,
Love
Angelpuss xxx
Hi Wanda,
This is great news! Praise God! Our oncologist also considers this stable. We\'re all blessed by these good reports. Thanks for updating us.
How is the weather there? We have only had rain, but temp to dip to 18 tonight. Just pray there won\'t be any power failures. Stay warm and safe, Hon.
Hugs,
Ingrid
Hi Wanda,
This is great news! Praise God! Our oncologist also considers this stable. We\'re all blessed by these good reports. Thanks for updating us.
How is the weather there? We have only had rain, but temp to dip to 18 tonight. Just pray there won\'t be any power failures. Stay warm and safe, Hon.
Hugs,
Ingrid
Hi Wanda,
Stable is such a good report! Steve sounds so compassionate with his concern about others not doing as well on Sutent. You\'ve got to count your blessings! Take care - Karen
Thank you everyone for your response to Steve\'s report. He is feeling a little sick to his stomach this morning so we will lay around today. Can\'t do much more as it has snowed about 7 inches yesterday. It\'s beautiful but here in the south we are not used to snow ! We canceled church today, can\'t remember the last time that happened. I pray that everyone is ok today. \"One day at a time, Sweet Jesus\". Does anyone remember that old hymn? Bye until next time, Love Wanda 1/31/10
Dear Wanda - just so so pleased by Steve\'s stable report. It\'s so wonderful that you can share this with us, and all your years of experience too.
Hoping that his stomach feels a bit better today.
We had 7 inches of snow over Christmas - a real real rarity here too! It was all terribly exciting for the first few days.... and then....
lots of love to you and to Steve, and, keep warm!
Meriel