"unrest"....check it out on netflix.
Hi, today i watched "unrest".....a netflix documentary about CFS sufferers filmed by a cfs sufferer named Jennifer Brea. hope you can watch it....i'm wiped out from nothing in particular except these war torn cells in my sick little body. not enough energy can be derived from the cells to allow normal function. not for the brain, for the spine, for the muscles, for any system......all systems are impaired with different levels of function daily depending on what is what. hard to explain to the outside world, hard to cope with sometimes for any of us with it or any serious illness.
the documentary reminded me that 17 million suffer worldwide. it reminded me that there is no cure, that if you have it for five years the reality that you will get better until there is a cure is not reality. brain foggy or not i mean to write better than i often can......sigh. hello, love you.......from one invisible sufferer to another hold me............just hold me. sometimes that is the best medicine any of us can give to each other......a hug that understands and lends support.
the giant panties remind me of pregnancy panty days, where the panty waistband goes up to armpits......life can be a muddle.
moving along, i finally ate today........the symptoms feel even worse now, but i think that is only because i was asleep the bulk of the day, to asleep to feel the pain in my glands and so forth.
back to bed.......peace out. xoxoxo and baby it's cold outside........brrrrr!
Replies
Thanks for the info on the documentary. I'll definitely check it out. I'm starting to feel...well, I'm tired, but not sick-sick. I had a good day today. I hope you're doing well!
Hug hug!
Since it has almost been 31 years since I have had a pain free day I sure can relate to what your are saying. Life with a chronic pain is tough & so few understand what we go through each day. Hugs all around....Bear
Hi Ruthie. I discovered the film "Unrest" was on Netflix just two days ago. I started to watch it but became very upset as it reminded me all over again how much this disease has taken from my life. So I had to turn it off. Anyway, last night, I watched the whole film and Frank came into the lounge room to comfort me when he heard me sobbing loudly. He certainly understood the deep pain I was feeling as I watched the film. When we first came to Cairns in the mid eighties I was totally bedridden for up to 6 weeks at a time and convinced that I was dying. Frank had to carry me to the bathroom. I was in hell.
After watching the movie, I was reminded of of how far I have come. I am still weak and unwell evry day of my life, but my crashes usually only last for days and a week at the most. When I say crash, I mean bedridden. After being ill with CFS from the age of 28 to now at 64,, this film hit me deeply. The loss of friends and the social isolation and being one of those missing millions stabs at my heart. Those years are gone forever and it's hard to accept. I left my friends and moved here with the intention of staying for only one year to heal my body and now it has been 34 yrs here. My friends now are my DS friends. Sorry have to cut it as I'm getting upset. Hugging you Ruthie. xoxo