The missing details.

When the specialist (Rheumatologist) diagnosed my fibromyalgia I was relieved to have a name for my painful condition.  There was a letter to my family GP to try certain medications on me.  No one explained anything more about this condition to me.  I was so sick and I had every symptom involved with this syndrome and even some not mentioned on the web when I finally found the energy and ability to research it for myself.  If only the specialist or my doctor had explained anything to me about this illness or even handed me a pamphlet on it.  I was so sick that I could barely function physically/mentally/emotionally.  It was when I went to counselling for depression and Post Traumatic Stress Disorder that I began to receive some understanding that I was suffering from a chronic illness syndrome that was very complex and the more upset I was about it, the more it would harm me.  Learning to cope physically/emotionally/mentally with this illness has helped me to accept the circumstances and work with them to the best of my abilities.  To go from a very high-functioning physical/mental state to disability was traumatic for me, especially since I did not understand what was going on other than a name for it when diagnosed.  The severity of my fibromyalgia is disabling.  I am learning to live with this horrible affliction to the best of my capabilities.  Daily suffering is a fact and I try to find ways to help reduce these effects on my life proactively.  So far, massage therapy, pain medication, breathing exercises, hot tubs, mild aquacize, positive thinking, acceptance of what is, research on fibromyalgia management/support groups, meditation, counselling, etc. is helping.  Daily hot, epsom salts baths help with the stiffness.  If my hands suddenly become painful and numb, I put them in fairly hot water right away if possible and this eases the pain and numbness.  Hot wet facecloth applied to the eyes a few times a day helps with the conjunctivitis.  Honey with chopped garlic clove helps with sore throats.  What I am thankful for today is that the brain fog is not so bad that I cannot think at all sequentially or cohesively.  Yeah!  Little victories mean a lot to me now.  I focus on the little victories instead of the absence of abilities.

Replies

Deelyn
Deelyn

Having a flare day with lots of nausea, muscular weakness/spasm/pain. Feel depressed and crying actually helps to reieve the emotional pain. It is so frustrating. My brain is at 1/8 of normal function and everything is so slow to process and so awkward to find sequential thinking, spelling, speaking. Hopefully, tomorrow will be a better day.
deleted_user
deleted_user

i did not know much of what you write about. i do get worse pain and other symptoms when i have emotional problems affecting me. i hope you can ease your pain and lift the fog.. hugs
Deelyn
Deelyn

Thank you spiritlost 1 :)