Test Results

Had my CT of chest (no dye) and MRI of abdomen (no contrast) on the 12th as scheduled. The suspicious area at the base of my right lung is still there as is the 2 cc mass on my remaining kidney. The good news is that there has been no change (growth) in either area. So that means no oral Chemo for now. Current strategy is prayer and retest in 3 months. Despite knowing something is there I consider this a positive result. Kidney function remains the same as well. My thoughts and prayers are with all of us battling this enemy called Cancer.
Andrea
It's now time to concentrate once again on losing weight. I lost my way there for a while.

Replies

rogerjd
rogerjd

I admire how strong you sound especially since all you can do is wait. I do hope that ther eis no change or if possible it disappears. If there is no change do you just continue to monitor?
andreacha
andreacha

As far as I know that is all that can be done for now. If there is a change then a plan of action will be formulated. It\'s quite frustrating that I cannot have the dye or the contrast for the tests as that is really the only way we can tell now what it is I\'m dealing with. It would be wonderful if it would just \"go away\" and be a false alarm but I am realistic - RCC normally comes back. I had to have more blood drawn as my creatine level (kidney function) levels were too high. Do not have the results for the re-draw as yet. I think the first ones were high because I had been on 2 antibiotics and 2 steriod for a COPD exascerbation. My INR (warfarin testing for clotting) was off as well at the same time. I want to do more research as to alternatives to testing. I\'ve been reading a lot about M.D.Anderson Hospital in Houston and the fantiastic outcome they have there with their cancer patients. How have you been doing lately? It gets discouraging at times doesn\'t it? I am a good listener if you get overwhelmed. Thanks for your note.
msgrace
msgrace

Hi Hon,

My husband\'s RCC metastised to both lungs in 2009. We\'re also in the wait/see mode, with teststing, without contrast, (due to only 20% function in remaining kidney) done every 3 mos. by oncologist. His mets grown a little then stabalize. I pray both his and yours will remain stable.
andreacha
andreacha

Thank you for your prayers and encouragement. Next tests are in January. Let\'s pray that your husband and I both get a reprieve from any growth. I spoke to my Oncologist when I found out there was an MD Anderson Cancer Hospital in Orlando (closer to me than TX). I requested that he contact RCC oncologists there to see if they have any diagnostic equipment that could be used safely on me. I expect to hear from him next week.Stay
in touch. Thoughts are with you.
Andrea
andreacha
andreacha

There is nothing at MD Anderson that we don\'t have here. The only other method of diagnosis for a better candidate than me would be a needle biopsy. However, renal cell is considered vascular and if they did a needle biopsy there would be instant bleeding that could not be stopped. Grace, is your husband on oral chemo as yet or not?
rogerjd
rogerjd

I hope you are still keeping your chin up despite the waiting game. No news is good new - right?
I\'m doing okay- dialysis sessions are getting easier - just difficult lying in one position for 4 hours and then afterwards ( a few hours later) my body begins to ache terribly all over and I just canlt concentrate on anything or get comfy. I think I may be getting close to my dry weight and this may be the effect of dehydration. I struggled over Christmas with my fluid restriction of 500 mil. I think this was due to eating dinner cooked by someone else and salt was definitely present which made me thirsty. I struggled all day trying to hold back on the fluid but kept giving in. By bedtime I was fluid overloaded because I do not pass any and it just spreads throughout my body making me swell. So was really uncomfortable until next dialysis session which was on Tuesday. Anyways that\'s enough about me- you have much bigger things going on and I await your update- fingers crossed. Best wishes xxx
deleted_user
deleted_user

Thank you for sharing all that you have. My prayers and support are with you in these daily health uncertainties and challenges with which we YOU courageously live!
In regards to weight: INNER Beauty and soul shines through, always in my experience. Mean people are not attractive. When I experience another human being that is always what I feel. Later if people ask me was that person tall, short, heavy etc I can\'t remember because I never see that stuff. What I see feel and am attracted to in others is the beauty on the inside. You have tremendous inner strength kindness and beauty. I hope that helps.
andreacha
andreacha

Thanks for the encouragement.