So tired of RSV and shtuff
Public groan... I am sorry that I whine so, but my journal gives me a way to update all of you and track how MG is doing/reacting to life
Grayson is still sick and is barely able to take in anything and still has high fever. Lungs sounded a bit better last night. Nicole's mother-in-love arrived yesterday and is spending the night and part of today, giving us all some sleep and a break. I will have Grayson from about 1 until mommy gets home at 4:30.
Erma has been diagnosed as failure to thrive. They asked me about a feeding tube. I will discuss this with her sister and her, but my heart says "no." I do believe her journeys on this earth may be over this year.
Shifra's heart continues to hurt and I wish I could make it easier. Wyatt has learned to use the telephone and called me 3 times on Sunday. At one point, he pretended to be "Scott" inviting me over for dinner, although I have no idea who Scott is, he must have been told not to keep calling me. 4-year-old silliness.
I am living from Mestinon to Mestinon. My chest starts to get uncomfortable and it is usually close to Mestinon time. I am told my voice sound like I have a cold on the phone. Nasal. I can live with the voice and I guess the chest is fine since it goes away with Mestinon. Will ask Dr about taking larger does or time release when I see her on Thursday. Fatigue is still always there. Need some zip.
Now, hopefully I am done being Debbie Downer and can paste my grin, no matter how crooked, on my face and spread some cheer. Too bad you guys had to put up with the bad shtuff today.
Grayson is still sick and is barely able to take in anything and still has high fever. Lungs sounded a bit better last night. Nicole's mother-in-love arrived yesterday and is spending the night and part of today, giving us all some sleep and a break. I will have Grayson from about 1 until mommy gets home at 4:30.
Erma has been diagnosed as failure to thrive. They asked me about a feeding tube. I will discuss this with her sister and her, but my heart says "no." I do believe her journeys on this earth may be over this year.
Shifra's heart continues to hurt and I wish I could make it easier. Wyatt has learned to use the telephone and called me 3 times on Sunday. At one point, he pretended to be "Scott" inviting me over for dinner, although I have no idea who Scott is, he must have been told not to keep calling me. 4-year-old silliness.
I am living from Mestinon to Mestinon. My chest starts to get uncomfortable and it is usually close to Mestinon time. I am told my voice sound like I have a cold on the phone. Nasal. I can live with the voice and I guess the chest is fine since it goes away with Mestinon. Will ask Dr about taking larger does or time release when I see her on Thursday. Fatigue is still always there. Need some zip.
Now, hopefully I am done being Debbie Downer and can paste my grin, no matter how crooked, on my face and spread some cheer. Too bad you guys had to put up with the bad shtuff today.
Replies
RSV is a bugger, Debbie. I am glad he is still well enough to be at home, which is generally a safer place to be than the hospital ;-) As you said to Bambee, please take care! b.
I am sending peaceful and happy thoughts your way....
Poor Grayson:( Hope the doctor is keeping a close watch on him.
You have your plate full again. Hard decisions with Erma.
Take care my friend. Remember that nasality means those pharyngeal muscles are weak so careful drinking/eating and watch your breathing.
hugs,
sherry
sounds like some emotional stressers going on in your life, vent away!! hope all heal...and be sure you get plenty of rest. more prayers forthcoming.
has your doctor started you any other meds- prednisone,imuran etc? sounds like maybe you need more than just mestinon. 25 mg of pred has done wonders for me. has really raised energy level!
Let the stress out here so you don\'t show it in your symptoms. We are a tough crowd who can handle a little venting if it helps a friend. Vent away and then go off and take some time for yourself. Can\'t help others if you let yourself get run down. Take care.
Pat
Debbie, vent away my friend, we are here for you. Poor Grayson, prayers to get better soone, agree glad he his home. Please take care of yourself.
hugs,Annette