sleep study tomorrow night.......goody goody.

the sleep study is tomorrow night.  check in at 7:30.......release is 5:30 am.  horrible hours.  ugh.  i am a grumpy grumpy girl.  there was a time in my life that Friday Night meant a hot date...........this is soooooo not a hot date.  rumble grumble grump grump grump!!!

ok here's the deal, i'm worried.  the good and the bad of it is this.......i do not have polymyalgic rheumatica.  but i definitely have Sjogren's syndrome.......the new guy is going to treat the symptoms with a med called plaquenil. so another new med to see if i can take or not take........

there is the usual evidence that i have autoimmune, inflammation and so forth.  i do not have ankylosing sponkylitis as the old rheumy always said.......but i do have degenerative discs and osteoarthritis which i already knew, why was my old rheumy so sketchy in her diagnoses....?  why didn't she ever treat me for my Sjogren's Syndrome Symptoms, advise me to have eye exams and other pertinest info?  did she hate me? 

the new guy saw a dilation on the aortic artery in my abdomen.  this means i need to have a CT scan soon to determine if there is an aneurysm or not......if there is how big it is......does it need surgery or monitoring?  that sort of thing.  the word aneurysm scares me.....which makes me try to pretend i'm not worried, but in truth i'm grumpy which is next to teary and scared.  trying to be a brave non worry wart..........but i feel like i need a lot of hugs, a cup of hot chocolate and more hugs after that.

forgot to say that i see my pcphysician on tuesday, dec 4th so i feel sure they will work on setting up the CT scan then. 

about the sleep study......i'm to bring pj's, reading material, a snack/a drink......my meds/toiletries as needed.  each sleeper gets a private room with direct tv.  they are going to try to have me sleep at 9 pm which i never .....ok hardly ever ever do.  so that should be pretty weird, i'll be laying there for a long time wishing i was home.  we'll see how it all goes.

the results come back in 7 to 10 days time.......then sleep equipment will be recommended.  training for use provided and then to see what works best for me,  the doctor assures me that if one type of equipment is not a good match not to worry, there are a lot of options. 

i just wrote out all my upcoming appts......gross.  feels like christmas ended before it got a chance to begin.  i ordered a pair of inexpensive fur lined indoor outdoor flats in black to wear as i go from doctor to doctor to doctor in the next couple of months.  so much for a christmas present budget.  almost every appt is $45 per visit........mad/sad/ oh well.  i can always bake presents.......right?  try to be positive grouch bucket girl.......c'mon try!  i double dog dare me to be a happier girl. 

ugh, me no wanna be chipper today.  maybe tomorrow?  things that make me giggle, i bought myself a new toilet seat, a gift for my main bathroom........i bought the wrong size.  good grief.  so dumb, don't know why i thought my existing toilet seat was so big ,but ah jeez........so now i need to take it back to wal mart and get the right one at home depot.  i have like zero energy to run errands lately.........

i wish we could sit in my living room, drink tea or hot chocolate.......order pizza or some kind of take out.........watch movies while sitting under warm throw blankets, tell stores........nap, chill and be company for and with each other.  sometimes i think i get way to  used to this quiet........wish you were here. wish i felt better, praying for you and your needs this very day.  i may not know exactly what to pray for but God has that omnipotent thing going for him, so he can manage everything........i think that if i had to be omnipotent my head would have exploded in 1960!  lol............hugs hugs hugs and more hugs.  ruthie